My dad, PawPaw, came in for a visit and she perked up. Adam came in bearing gifts from a few people at the center (thank you!!!) and she perked up even more. After a while, she was laughing and joking with both of them. PawPaw sat with her while we went down for lunch but before we left, she told us she wanted a hot dog and french fries.....!!!! Although she didn't eat but maybe 1 or 2 of the fries, she ate half the hot dog. Very impressive :)
She went down to school for the last hour of the school day. She really does enjoy school when she gets down there. The teachers down there are so nice as well. They allowed us to take her notebook with us so that she could catch up some. She didn't make it to school as often as I would've liked this week since she wasn't feeling too well.
She was given 2 bags of blood since her hemoglobin dropped below 8. Her blood pressure goes up and she gets kind of tired from it. It made her a little nauseous - the nurse said it can happen sometimes. She ate some orange sherbet...not cheese ravioli or a hot dog but she ate 3 times today!
One of the Child Life Specialists made her 'Beads of Courage' necklace with her today. She gets a bead for everything she has accomplished from each needle pokes to each overnight stay in the hospital to every time she had a fever to surgery. It's so neat to see all that she's accomplished and overcame so far. She will continue to get the different beads as she goes through her treatment. She also brought a 'Beads of Courage' sibling package for Mason - he's going through some stuff too!
Nonna's with Haylee this weekend so I'll update as I can, otherwise it'll be Sunday afternoon for a more detailed update :)
On a wonderful, absolutely fantastic note: Colleen and Dr. Kellar came in today and gave me a copy of her counts...which are ON THE RISE!! She may get to go home as early as this weekend but definitely by Monday or Tuesday of next week!! She will have her bone marrow tested in the week or so after discharge to see if the leukemia is in remission thus far. Most likely, after Christmas, she will begin her daily outpatient treatment with the Arsenic for about 2 months. We are so thankful for everyone's thoughts, prayers, and support for Haylee and our family during this rough time. We've got a very long road ahead but with so many wonderful people such as yourselves and everyone else who continues to be so thoughtful and so supportive, we know that Haylee isn't alone in her battle. She's got an awesome posse!!
WE'LL BE HOME FOR CHRISTMAS!!!
WBC - 2640
Platelets - 12,000
HGB - 7.9
SEG - 5.0
Monocytes - 3.0
Ryane, that is so awesome!! I know you are excited and so proud of Haylee!! Prayers will continue to head your way!! We love you!! ~Jamie and Trey
ReplyDeleteThat Is Awesome!!! Come on Haylee, keep getting stronger, keep eating, and keep fighting! Can't wait to see you all together at home! <3 Kimberly
ReplyDeleteWHOO!!HOO!! GOD IS GOOD AND HE IS HEADING UP THIS POSSE!!! LOVE YOU!! AUNT SHERRY AND UNCLE JAY
ReplyDeleteAw! Yay!! Such good news! Good job Haylee! <3 Michelle
ReplyDeleteThat is the best news I've heard all day! Even though she still has a long road ahead of her, she is moving in the right direction! :) Continue to be strong and kick its butt!! I love you guys bunches!! ~ Stephy~
ReplyDeleteAwesome news! So glad to hear things are looking up. I'm praying for you and your family. Love y'all :)
ReplyDelete-Laura
That is awesome Im so glad to hear how great she is doing.. Remember we have an AWESOME GOD and he can help us thru anything.. Still praying...
ReplyDeleteAmanda
I don't exactly know Halley's story but just reading this seems like God is working his miracle! My nephew lost his battle with cancer only because he was so young and was not in remission long enough before the cancer and a second brain tumor came back! He was 6 years old when God called him home! We miss him dearly but it helps knowing that he is with the Lord! I am so glad to hear that your baby girl is doing better I know there is a long road ahead but from what I have read u seem very positive and with that I know that ur miracle baby has an awesome support system so she will be great! Love in the Lord and trust in him will carry u to recovery! God Bless you and your family and exspecially little Hayley! My prayers are with her and ur family!
ReplyDeleteThis is GREAT news!! YAYAYAYAYAYAYAYAYAY!
ReplyDeleteWhat wonderful news! Tell Haylee everyone is so proud of how hard she has been fighting. Keep it up baby!!!! It may still be a long road, but hopefully being in the comforts of home with give you all a little peace of mind. Family togetherness I am sure has a whole new special feeling! Prayers continuing.
ReplyDeleteWhat GREAT news! How awesome it must feel for you to see prayers being answered. May the good news continue to come barrelling in. :) Remember the ups when the downs occur and know that the ups will return very soon. I am a believer in a positive attitude is half the battle. You guys have that and it will help win the "war" faster! I know that's what helped my dad! Love you guys! Can't wait for you to get home!
ReplyDeleteHello my name is Monica Miller first of all God bless Haylee and your family!! my son Ethan was diagnose with leukemia ALL on April 13 2011 a friend of mine told me about your daughter Haylee but you know there are too many kids over here at Egleston but I think I saw her when Santa came over at the lobby even we where 'neighbors' at the hospital,I'm so glad she is already home that is so wonderful! We are still at the hospital since last weekend for fevers and low counts you know... Last night had a very traumatic experience with the access into his port and still hoping come back by Christmas! Ok..well just to let you know about an insurance that Haylee can get for sure ( all kids with cancer get it ) and cover all the % that your insurance at work does not, that way all your dr bills will be cover at 100% she will get medicare for the most medications and there is some kind of help for gas and food expenses even they can help you with transportation to the Hospital.. We couldn apply for all this help because our income with both spouses working but if your thinking about quit jobs it might work for you! Anyways fo not panic I already experience same and I really freak out.. But thanks God my husband has a job and I still keep working sometimes (
ReplyDeletewe go clinic every thursday sometimes all day and we already have like 5 hosp. With 4 to 5 days to stay there and 2 more with 8 to never know when..) plus staying at home with my son 1,2 or 3 days because nausea,headache, dont feeling good or fatigue..but we can still have a regular live,go out to eat,movies,bowling, beach,places even Xmas presents! Do not panic,You know it is not easy.. I don't have any family here in this country and my husbands family is so afraid to drive to ATL.it is sad but No one help staying even for a while or even visit him you know the only persons that came to see him since diagnose were his lovely teacher and his basketball couch and I really really appreciate their visit and all that they do for my baby!That was super nice for my son! it is hard but me, my husband and my 13 oldest son will be here every moment that he needs us no matter how or where we will be here always keep trying foward!
d going back and foward on this But you are strong you have family and friends and you will make it through just keep strong and God will take care of the rest even on the hardest moment keep your faith.. God Bless Haylee and all kids in the world!! You can find my son on facebook.. Haylee might want to know him at least on pic..His name Ethan Miller 8 yrs old lives on Gainesville ,Ga.