My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

December 5, 2011

12/2/11- 12/4/11 - Weekend with Nonna

My mom, "Nonna", came to stay with Haylee for the weekend.  Her teacher from school came to visit her in the evening and brought her schoolwork and some goodies to help keep her busy during the days. 
On Saturday, she visited with my aunt and uncle as well as her PawPaw (my dad) during the day.  Milk is about the only nutrition and fluids she's been taking in - she's back to not eating.  They had to hook her back to the IV fluid bag.  She had been getting Lortab for pain but with nothing on her stomach but milk and slushies, she ended up throwing up.  She also had to be given platelets.  She played board games with Nonna and Aunt Sherry (and cheated I think!). 
Saturday evening, she spiked a fever of 102.  Since we were waiting for blood cultures to come back they went ahead and started her back on her Fortaz antibiotic and started her on Vancomycin, another antibiotic.  They began running the new antibiotic into her so fast she developed what is called "Red Man's Syndrome" where she turned red all over and began itching non-stop.  Her scalp turned red, her hands and feet started itching real bad.  They slowed the antibiotic and gave her some benadryl to stop the itching.  She was fine after that. 
Sunday, she had a visit from her 2nd grade teacher and perked up some.  She was very blah when I came back.  Her and Nonna met us downstairs and she played with Mason some.  Even laughed and giggled with him!  But she still doesn't miss him (so she says....!).  When we said goodbye to Nonna, Daddy, and Mason, we came back upstairs and she was still blah.  I asked if it was normal for kids to slip into a kind of depression and yes, it is.  She seemed like that's what was happening.  I'm sure it's difficult - stuck in the same hospital room day in and day out, not going outside, feeling sick, mouth hurting from mouth sores - it's a lot for a kid to handle. 

MRI results came back Friday morning - all is good!! 

12/2
WBC - 1620
Platelets - 21,000
Hemoglobin - 12

12/3
WBC - 1120
Platelets - 11,000
Hemoglobin - 11.3

12/4
WBC - 1290
Platelets - 61,000
Hemoglobin - 10

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