My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

December 17, 2011

12/16/11 - Day 1 of our 2nd hospital visit

Turns out the blood culture taken from one of her central lines tested positive for having bacteria in it.  Apparently it can be a common thing.  Needless to say, I went through so much guilt because the type of bacteria found can be from skin, mouth, nose - I changed her caps, saline flushed, and hep locked her lines Wednesday afternoon.  There's no way to tell what really caused it at this point but I went through the guilt anyway. 
She hasn't had anymore fever since yesterday afternoon :)  Maybe that means the antibiotics are working!  I asked them to take her off the IV fluids and let her try to drink on her own (and they did).  She went downstairs to The Voice with a few other kids from the floor and a Child Life Specialist to meet James Durbin, one of the former American Idol finalists from one of the years past.  I don't watch it so I didn't know who he was. 
We've had to find ways to keep ourselves busy because even though I thought ahead to pack a bag just in case we had to stay, I didn't pack ways of entertainment!  No DS, no tablet, no laptop, no books - NOTHING!  We've pretty much watched TV, colored pictures, and wore out the video games in the playroom. 

My mom is down tonight to stay with Haylee for the weekend.  Adam's Christmas party is tonight and we are in need of time to ourselves and a night away from our worries, our responsibilities...our lives.  We worried about Haylee and Mason, talked about Haylee and Mason to people (they asked!) and to each other but just to have the time together and out with his work crowd (including awesome friends, Durena & Jerry - thanks for being great distractions!!!)...made all the difference in the world.  We really had a FAB time and it was MUCH needed together time!

WBC - 4200
Platelets - 71,000
HGB - 9.9 (IV fluids can dilute the blood)
SEG - 48
Monocytes - 11

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