12/20/11 - Home Bound AGAIN!

Haylee had another good night!  She slept all night again.  The only thing is that she gets Benadryl at 4pm for her Vancomycin and then she sleeps until 6 or 7pm so when bedtime rolls around, she's not sleepy!  She is up until the 12am dose is due then sleeps all night.  Bad thing for her is when we go home, she will have to take the Benadryl by mouth instead of IV and she will have to start waking up for that along with her pills!  Guess I'll buy her an alarm clock so that's what is waking her up, making her grumpy and not me!
Dr. Cooper came in and said we will get to go home today (I won't get to meet Luke Bryan tomorrow but we're going home and I'm thrilled)!  Her counts are relatively good but her ANC is not where it needs to be.  She looks good, acts great, is eating and drinking...he said the main thing is hand washing and hand sanitizing all the time.  She doesn't have to wear a mask unless we go out into big crowds.  Any signs of fever, she's back again. 
We went downstairs to see the therapy dogs again.  She really enjoys them.  They send her in kind of a trance as she's petting them.  One of the dog owners asked Haylee is she wanted to have her picture taken with 2 of the dogs and she agreed.  The dog owner had a Polaroid camera so she gave Haylee the picture after it was taken and Haylee brought it over to me with a look on her face that said, 'What do I do with this?'  I explained to her what a Polaroid picture was (as the image was coming into view) and asked if she had ever seen one before and she said no.  She made me feel soooo old!!
We left today around 12:30pm!  We brought home 6 days worth of IV antibiotics - it doesn't seem like much but all of it has to go in my fridge and they look like baby bottles with a balloon inside.  It's weird looking.  Haylee can carry it around with her instead of having that pole to navigate (which is so much easier!).  I hooked up the first one today at 4pm with no issues.  It really is simple, just a few steps to remember.  Once we are here for good, it'll all become 2nd nature to me.  She has to get Benadryl by mouth since we're home and it didn't kick her butt at first, but it did put her to sleep.  She has to take the adult pills.  At least she's used to taking pills!
When it rains, it pours around here!  First, Haylee is diagnosed with leukemia. Second, I'm out of work for a undetermined amount of time to take care of her.  Third, Haylee has to see an opthamologist (she may need glasses).  Fourth, back to the hospital we go with fever. Fifth, we get home and are now having septic issues!  All in a month...literally.  It's been a month today since we headed to the urgent care where it all started.  It's been the longest and craziest month of my entire 30 years. 

The good thing through it all, the 4 of us are doing great!

WBC - 3360

Platelets - 282,000

HGB - 9.6

SEG - 4

Monocyte - 14

ANC - 130 (should be around 1000+)