My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

December 28, 2011

12/28/11 - So this is what it's like to go to clinic...

We had our first day of clinic today.  We got started down there at 7:30am when we registered for her EKG/Echocardiogram.  I sat in the room while the sonographer did the Echo and it was really neat to see the different pictures of the heart.  She's had one done before but she was in the PICU and I wasn't all there at that time.  Her Echo came back normal :)
We were 1 1/2 hours early for her clinic appointment but they had a cancellation and was able to squeeze us in.  They drew blood labs and did a physical exam before her bone marrow aspiration.  Her counts are looking great and her physical was good, too. 
Her aspiration was a little comical.  She was given Fentanyl first for pain (so she didn't jump during the procedure and it lasts 2 hours afterwards to help with pain) and was sedated (not general anesthesia like before) with Propofol.  The doctor giving her the meds said that the Fentanyl would make her feel good and a little woozy (which it did) and work within a few minutes and the Propofol would make her sleep and work within seconds (which it did).  When the doctor started administering the Propofol, Haylee said "I feel woo..." and she was out!!  I was giggling.  They seriously meant SECONDS!  I should have the results back between a few days and 10 days. 
My mom and I went and met up with one of the mom's from the Aflac floor that we got to know (she has APL, too).  It was nice to see her again, even though I was hoping we wouldn't see her today.  They may get to go home Saturday and I'm praying they do!!!!
Haylee was done with the aspiration within a few minutes and was awake with Lindsay, a Child Life Specialist, collecting some beads for her Beads of Courage necklace and eating goldfish.  We were able to leave about 10 minutes later. 
We got home and the rest of the night was cool, calm, and collected (maybe not necessarily calm, but uneventful nonetheless)!

WBC - 4090 (almost low-end normal!!!)
Platelets - 521,000 (high but normal since her bone marrow is flushing out more platelets)
HGB - 11.3
ANC (combination of SEGs and Monocytes) - 1270 (almost low-end normal!!!)

1 comment:

  1. Its nice being able to read about your journey! We are praying for Haylee and I am so happy she made it home for Christmas! I have cried reading so many of your entries and I am so proud of both of you for being sooooo strong!
    Love,
    Devin

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