Oh, how I despise Atlanta traffic in the rain!!! We left our house this morning at 7:45 thinking that we would arrive on time (if not before) for our 9am EKG appointment. Would you know that we were 10 minutes late?? When it rains, people forget how to drive. And if they see blue lights stopped on the side of the road...forget about it! Everyone slams on the brakes. On the bright side, we get our weekends back :)
The EKG went off without incident this morning. We arrived before our 9:45 physical appointment and Haylee was triaged in within about 15 minutes but they didn't have any Leuk/Lymph rooms available so we had to go back into the waiting room. An hour later we were put in a room. Haylee was able to go into the school room and get a head start on her schoolwork for this week since we were waiting for so long. She had her labs drawn, had her PE with Stacy (1 of the 4 doctors she sees in outpatient), and back to school she went while we waited for labs to come back.
I had a conversation with Stacy about Haylee's eye appointment with the Emory specialist at 9am on Wednesday. The MRI is scheduled for 8am with the LP immediately afterward. Since the MRI will last about 45 minutes, the LP after, and recovery from the LP and sedation, Haylee won't make it to that appointment on time. Stacy and I talked with Dr. Abdella about trying to get her squeezed in. I told them to tell me what to do, where to go, and at what time and I would do it. The Emory eye doctor is super busy apparently!
Infusion went good :) She did all of her Social Studies work so I let her go and play the Wii. Lindsay, the outpatient Child Life Specialist, played with her before she had to go to a meeting and tried to throw in how important doing school work was before playing (Thanks Lindsay!).
We saw 3 of the 4 doctors that sees Haylee in outpatient today trying to get this eye appointment stuff figured out, having LP consent forms signed, and just getting up to speed on her overall situation and condition. I really like the doctors she sees in the outpatient clinic. I feel like she's in the best hands she can be in. They take time to answer my questions and address my concerns. I would never, ever wish a situation like this on anyone's child but should it happen, the Hem/Oc doctors at Egleston are fantastic.
WBC - 11440 (a little high, but they didn't seem concerned. Dr. Keller said her counts and chemistry was great!)
HGB - 12.7 (blood volume is going up on its own)
Platelets - 517,000 (still high but the ATRA is still in her system. down from last week.)
ANC - 3890
EKG was normal. Everything is looking good! Just need to get this eye thing figured out. Hopefully I'll have an answer by Wednesday.
No comments:
Post a Comment