My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

January 17, 2012

1/17/12 - What a loooong day!

Haylee's EKG/PE/Inf appointments began at 9am today but because of traffic and a few sprinkles on our way down, we were 30 minutes late beginning everything.  We got to the cardiac floor at 9:40am, had the EKG, and was up in the clinic by 10:05am (only 5 mins late).  They don't mess around on the cardiac floor!  We were put in a room around 10:30am and seen by the doctor at 11am.  We had labs drawn but didn't get results from them until 1:15pm!  It takes so long for metabolic/electrolyte panel to come back because they have to send it downstairs instead of their lab in the clinic  The doctor said everything came back normal, including her EKG, except her liver function is a little high.  The doctor didn't seem concerned by it because she said the ATRA medication can do that.  They will continue to watch it and treat it if necessary.  Haylee's last day of ATRA for this round was yesterday so we should see a needed but normal decrease in her liver function soon.  She's been off the blood pressure medication for a week now and her BP today was normal :)
We were set up with the arsenic infusion by 2pm and done by 4pm.  Maggie, our infusion nurse, is AWESOME!  She gets us in and out as quick as possible!  Haylee wasn't able to see the school teachers today since the school room closed at 1pm so she worked on some worksheets that her teacher sent for her.  There's so much hustle and bustle on the infusion side that she has a hard time concentrating but she got 4 worksheets done, front and back. 
We got home by 5pm and just relaxed.  Driving and riding and hurrying and waiting makes us tired!  On a positive note, I found a new route to the hospital from 85 and it really makes it faster! 

WBC - 7170
HGB - 11.7
Platelets - 536,000 (a little high but the ATRA can cause the bone marrow to flush out extra platelets.  Should see a decrease next week).
ANC - 3350

1 comment:

  1. She is doing so awesome! I am so proud of her and you! You to are so dang strong! Love ya'll miss ya'll we need to get the kids together soon!

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