Haylee was able to go back to school today!! She was so excited she was up at 5am this morning and was ready to go (dressed with shoes on, teeth brushed, breakfast ate, and bookbag packed) by 6am. No one else was out of bed yet!!! I dropped her off at school and went to work myself.
My first day back was a pleasant one. I was welcomed back by the staff, parents, and the kids! It was like riding a bike, like I never left. I wasn't able to worry about Haylee too much. I made sure to stay busy. By the time 2pm came around, I was ready to go get her!
She got in the car and said her day back was good! She wore a hat to school but wasn't wearing it when she came out at the end of the day. She said no one said anything to her about her hair and everyone was glad to see her. Even some of the different teachers came by to see her! She did mention that she thought there were a few girls that were pointing at her hair while they were waiting during afternoon carpool. I told her that it was okay to ask people if they had a problem with her hair but not to be mean about it. She doesn't understand that kids can be cruel and most kids that would make fun aren't sure what to do or say because they don't understand what she's going through. She didn't seem too upset by it and I love that about her :) She's been feeling good today and hasn't had any issues with her line site itching.
She has her appointment with the optic nerve specialist in the morning. Hopefully, we will get some answers about the pseudotumorcelebri (what a mouth full!), if the swelling has gone down, and what this means regarding the ATRA.
It was great to have you back today! I'm so glad to hear that Haylee had such a good day at school and that she is feeling well enough to go. You girls are such a source of strength, determination, and courage. I'm so blessed to have you in my life. I've learned so much from you through all this, and my prayers continue to be wih you and your family.
ReplyDeleteKelly C
Kelly - you are too sweet! Thank you sooo much for everything! :)
DeleteWow! Haylee what a treat to get to go back to school and see all of your friends! So glad to hear that everything went good. We continue to pray for you and keep the kids posted daily about how strong and brave you have been. Glad to hear that you have a couple of weeks off from your meds. Ryane, I am happy that you were able to have a bit of "normalcy" in your day also. I know Discovery Point is like an extended family, and I am sure everyone was thrilled to have you there. I wish we could do more for all of you from a far. Know that you are always in our thoughts and prayers. We are also just a phone call away if you need anything! Keep all of those positive posts coming!
ReplyDeleteThanks Michelle! Seeing your name pop up on comments is so great! I'm glad you're keeping up with us and we miss you!
Delete