My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

February 23, 2012

2/23/12 - What a busy day!! And we met Cody Simpson!!!

Waiting for Cody Simpson inside The Voice radio station


We both met Cody Simpson but she got a picture with him :)

Q & A session - he's a very cool kid!

It was such a pretty day today that we spent about an hour in the garden.

Smelling the flowers and enjoying the sunshine :)

Help us bust outta this place! Haha!  The gate actually was unlocked...could've snuck right on to one of those Emory buses...!


Chillin' in the garden, just me and Bug :)
We had a pretty busy day today - it always helps keeping busy.  We got up, got dressed, and had breakfast by 9:30.  Haylee went to school today from 10:15-11:30am.  She got 2 sections of her Math work done so hopefully, she will get the rest of it done tomorrow.  She's already had more sent to her and she'll need to get started on it next week. 
Adam came today and had lunch with us.  He likes it and so do we :)  We shopped around the gift shop to kill a few minutes before going to The Voice to wait for Cody Simpson.  He showed up a little after 1pm and did a Q & A session with the director of The Voice as well as answered a few questions from fans.  He's a cool, laid back kid.  He just turned 15 last month...yes, he's a kid and he's also Australian.  The accent was awesome!  After the interview, he signed autographs and took pictures.  Haylee has a Polaroid picture as well as the picture posted above and a personally autographed picture from him.  She was sooo excited!! 
We had a 2pm curfew (haha) for a quick antibiotic then she was unhooked for almost 3 hours.  We played in the playroom for a while (well, she did...I read a book!) then went down to the garden to enjoy the weather.  It was so nice outside!  She kept wanting to run and skip so I finally gave in to the skipping but not the running.  She wasn't wearing shoes, just thick socks so running wasn't allowed in my eyes!  I got a phone call from the clinic floor and it was Maggie!!  She said she was looking out the window and saw Haylee outside running around and said, "She doesn't look like a girl who is supposed to be sick!"  We looked up at the windows to see Maggie waving at us.  To know that she took time out of her day to call me because she saw Haylee outside playing and to check on her, makes me adore Maggie even more.  WE LOVE MAGGIE!!!
Colleen, one of the nurse practitioners, came by for our daily check up around 5pm.  She joked with us about how she thought she was going to have to send out a search party for us because we were never in the room when she came by.  She also said she would rather see her acting like she has been and super busy because she was so sick last time she was here :(  Her cultures came back positive again from yesterday.  She started antibiotics after the 2nd culture was drawn so I'm not surprised.  The cultures from today haven't come back yet.  She's had a good 36 hours on 4 different antibiotics so I'm hopeful they will be negative.  She hasn't had anymore fever and she's acting and feeling fine.  Colleen said they would send her home on home medicines when she has 2 negative cultures.  She could go home as early as Saturday or Sunday!!  If today's cultures come back positive, she will have to have her line replaced.......not a good time.  I just asked our night nurse if she has heard about today's cultures and she said no and that they usually sooner call if the cultures are positive.  So far, so good!
We went to BINGO tonight and she won 3 prizes.  She even picked out a prize for Mason!!  It's a Matchbox car but still...she thought of him.  No matter what she says, she loves him!!  She also got a denim backpack she can decorate (which she is doing now) and the "Gnomeo and Juliet" dvd.  We had dinner, she had a bath, and now we're just relaxing.  It's been a busy day but it's helped to pass the time. 

3 comments:

  1. Glad you guys had a good day! I just hate you had to spend it at the hospital. Hope you guys can go home this weekend! Miss ya! Stephanie B.

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  2. it was so good talking to you today.... :) i'm still praying... if you need me... call me!!

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  3. I love hearing how well Haylee is doing!!! Its great to hear that she can enjoy "skipping" and playing!!! She is definitely a strong willed young lady!!! Love you guys!!! Praying she will go home this weekend!!! :P

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