Clinic on Wednesday went well. Maggie called us in early so we didn't have to wait until 3pm to drive downtown. We were in and out with no problems :)
Today, Haylee had her LP scheduled at 10:30. She couldn't eat anything after 4:30am and no liquids after 8:30am. When we were on our way down, we passed Burger King and you could smell the food. She kept saying how good the food smelled and couldn't wait to eat some goldfish in the clinic!! The good thing about having procedures done is that they have 3 procedure rooms in the clinic and are able to perform LPs, bone marrow aspirations, and lots of other things on the same floor with familiar people. She was a little scared this time around but settled in quickly after a little pep talk with Lindsay, one of the Child Life Specialists. Stacy, Lauren (a nurse she's had before), and Lily (her last sedation specialist) we with her for the LP. When they started the Propofol, she started to cry (later, Lindsay and I found out she doesn't like it because it makes her head feel funny and kind of hurts a little). She didn't cry for long - she was out like a light after about 10 seconds.
I stepped out of the room and went to the PICU waiting room to get her a bag of chips and me a Coke. When I got back to the Family Consult room directly across the hall from her procedure room and sat for about 5 minutes, Stacy poked her head out and said she was all done and already waking up. When I walked in, I sat next to her and she kept wanting to get up and Lauren and I kept holding her down (gently!) and she was getting mad. She started crying and when I asked her what was wrong she said, "you won't let me get up." Then she was saying she couldn't see so I offered to give her her glasses back. When she put them on she said, "everything's still blurry!" I told her that was still the effects of the Propofol and it would be done in 15 minutes or so. She had to stay laying down for 30 minutes to avoid a headache.
Maggie came in and went ahead an hooked her up early since the chemo was ready and she was doing fine. Once she was released from the LP, we walked over to the infusion side to finish out her treatment. There was 30 minutes left for school so she went with Jami and got a little done. She had some lunch, watched some TV, and played with Lindsay until we were done.
Haylee met a girl today named Anna who has the same 'well loved' cow as she does (and hers is well loved, too). Anna's cow is named "Vaca" (spanish for Cow) and Haylee's is "Cowie" (original, right??) Anna loves cows so much she has a cow ring, backpack, hat, and her fingernails are done with cow spots. So sweet :)
Stacy said there was slight pressure from the LP - a 29. We should know more in the next week or so.
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