6/28/12 - The glimmer of hope we were waiting for...

Today was the last day of Camp Sunshine.  Haylee was looking forward to today all week because of the archery and the 'campfire' with s'mores.  I can't believe all the lengths Camp Sunshine 2 U goes through to make sure that these kids still here in the hospital still have the best camp experience possible.  Haylee will be able to go to camp next summer, feeling good and with great counts :) and Mommy won't be as nervous (but nervous nonetheless!). 

Haylee doing some archery

Camp Sunshine 'Campfire'

We hung out in the room for a bit in between activities.  Dr. Ramirez came in to check on Haylee before we disappeared for a few hours - turns out counts may truly be starting to come in and she could be discharged either tomorrow or over the weekend depending on what counts look like tomorrow morning.  Haylee and I are thrilled beyond words but the negative part of me is staying on notice...just in case.  She's supposed to be scheduled for Monday or Tuesday for her BMA regardless of what happens. 
We headed to The Voice at 3:45pm to meet and listen to The Cumberland Collective.  They had a really awesome vibe - like a mix between country music, Zac Brown Band, and Citizen Cope.  There were about 10 guys, playing all different instruments and all had different sounds.  They meshed really well together.  I would probably listen to them if I had their CD.  Before their appearance at The Voice, they were actually on our floor in the teen room warming up (our teen room has drums and other musical instruments) and flooded the floor with good music.  Haylee walked down their and they gave her a shaker and she played with them.  She also played with them at The Voice.  They were talking about how they wrote a song called "Haley" but are now going to change the spelling to how Haylee spells her name cause they like the way hers is spelled.  They were very nice guys!

The Cumberland Collective

Haylee playing her shaker

Haylee and The Cumberland Collective

After they left, Haylee played DJ at The Voice until time for BINGO.  BINGO was busy tonight!  There were lots of people there.  Haylee won Silly Putty for her and Mason, a little brown teddy bear for Mason, and a $15 iTunes gift card for herself.  Not too bad!  We finally went back upstairs about 6:45pm and  CURE brought dinner tonight - Mellow Mushroom.  Haylee wasn't too thrilled with pizza but once she tasted Mellow Mushroom, she changed her mind.
She woke up this morning with some sort of rash on her face (God only knows where it came from but this is Haylee Kate we're talking about!).  It would get better throughout the day and then worse.  It seemed to get worse when she got hot.  We Skyped with Adam and Mason, then Cameron (PM nurse) gave her some Benadryl since the rash seemed more red again.  We watched a little 'Princess and the Frog' then she headed off to bed.  Fingers crossed we get good counts tomorrow!!

I want to recognize the very special people who continue to show support of Haylee and our family throughout this entire journey.  She still has 2 years of therapy left and then another 5 years of staying in remission to be considered 'cured' (Haylee will be about 16 or so).  There are people, near and far...strangers, family, and friends, that continue to be a huge help to us.  I know who you are and so do you...thank you, thank you for everything you do and continue to do.  You will never know how much it means to us :)

WBC - 1970
HGB - 12.2
Platelets - 55k (hold steady please!!)
ANC & SEGs - 0
Lymphs - 93 (going down!)
Atypical - 1 (what's it gonna be?)
Monocytes - 6 :) :) :) (these will eventually turn into neutrophils which make up ANC and SEGs)


The fundraiser is still going on!!  We really would like to reach our goal to ensure that all of our financial obligations are well taken care of.  Please promote through Facebook, Twitter, and through email to get the word out!!!  Thanks! 
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee


Please pass this along to any and everyone who can help! If you are aware of any other way to get the fundraiser out in the community, please let me know!