My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

June 25, 2012

6/22/12 - Queen for a Day, a mystery guest, and saying good-bye to Lindsay

Haylee had a busy day today.  The doctors came by to let me know that Haylee's hemoglobin was below 8 so she was going to get 2 units of blood this afternoon.  That'll take a while.... :(
Volunteers brought a flyer by today about a King/Queen for a Day going on complete with makeup applications, manicures, ice cream sundaes, smoothies, and also things for boys to do.  Haylee didn't do the makeup (since she reacts to everything) so she just let them paint her nails, had ice cream, a smoothie, and decorated a cookie. 

Gold nails with blue glitter :)
Haylee's mystery guests showed up at the start of the King/Queen for a Day event - Taylor, Sydnee, and Chad!  Haylee and Taylor were BFF when they were 3 and up until Taylor moved about an hour away.  She was trying to guess Thursday night who was coming to visit but wasn't able to guess.  Haylee and Taylor raided the ice cream and smoothie stands in the playroom, bounced around all over the place, and played games.  They haven't seen each other since Haylee's birthday in February and the visit was much
welcomed :)

Haylee and Taylor :)

Haylee and Taylor playing 'Headbands - Disney version'. 
 All the excitement died down around 4pm.  Lindsay came in just before 5pm to say her final good-byes to Haylee (she made Haylee her last stop and gave extra time for good-byes).  We are really going to miss her around here.  She had this really great connection with Haylee that none of the other child life specialists have with her.  Lindsay was by far Haylee's favorite person to see at the hospital (besides the clowns on Tuesdays and Fridays in clinic and Wednesdays on inpatient).  She helped Haylee through lots of rough patches, helped to keep her calm when necessary, entertained her, and made her smile when she needed it most.  Best of luck to Lindsay as she makes her move back to Texas - we will miss you dearly.

Haylee and Lindsay :)
Nonna showed up about 7:15pm and I went home for the weekend.  Counts are still zero but maybe that'll change over the weekend. 

WBC - 2400
HBG -  7.9
Platelets - 38k
ANC - 30
Lymphocytes - 100 :(


The fundraiser is still going on!!  We really would like to reach our goal to ensure that all of our financial obligations are well taken care of.  Please promote through Facebook, Twitter, and through email to get the word out!!!  Thanks! 
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee


Please pass this along to any and everyone who can help!  If you are aware of any other way to get the fundraiser out in the community, please let me know!

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