My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

June 25, 2012

6/25/12 - Camp Sunshine came to Haylee! (and the other kids on the floor)

Haylee fishing with magnets
Since there are many children here on the floor that aren't able to make it to summer camp with Camp Sunshine this year, like Haylee....Camp Sunshine came to them!  They will be here everyday this week to do fun things with the kids.  Today, they had a bracelet making station (I made a bracelet for Haylee), ring toss (that Haylee stayed at mostly), fishing for magnetized fish, a name tag making table, and a place to make their own 'sunshine'.  Haylee wanted to play the games mostly, but she sat down and dabbled in some art for a little bit.  Later in the day, 'Mr. Tone' the Magician put on a show for them filled with magic and laughter.  Haylee even brought her 'magic handkerchief' and did a bit of magic herself.  I let her do everything by herself with the 'camp counselors' so she was at least on her own like she would be if she were at camp.

Magic show with Mr. Tone


Nonna and PawPaw came to visit today since they're both on vacation this week.  When they left, Haylee and I hung out in the room for most of the afternoon.  All of the excitement happened this morning! 

Dr. Cooper came by this morning to check in - no changes, just waiting.  Haylee's platelets were below 10k so she had to get a unit of platelets today.  He put a positive spin on her counts for me today.  As of today's counts, Haylee has 4% atypical cells, which are cells that the bone marrow hasn't quite decided what it wants them to be yet.  They could turn into monocytes, SEGs, neutrophils, lymphocytes or another type of cell.  We are all hopeful, crossing our fingers, and praying they turn into monocytes since they are the first cells to come back when counts rise.  We'll see.  I'm not getting my hopes up.  I'm tired of doing that and getting my hopes shot down. 

WBC - 2470
HGB - 12.8
Platelets - <10k (makes me wonder how low they really were)
ANC - 0
SEGs - 0
Lymphocytes - 96
Atypical cells - 4 (fingers crossed they're something good!)


The fundraiser is still going on!!  We really would like to reach our goal to ensure that all of our financial obligations are well taken care of.  Please promote through Facebook, Twitter, and through email to get the word out!!!  Thanks! 
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee


Please pass this along to any and everyone who can help! If you are aware of any other way to get the fundraiser out in the community, please let me know!

2 comments:

  1. Thinking of you guys!, Kimberly

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  2. You guys are always on my mind. Hope Haylee comes home this week. We will keep praying for it. Love u bunches! Stephy, Todd and Jordan

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