My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

June 13, 2012

6/13/12 - We met Gavin Degraw at The Voice!!

We had a pretty low key morning - both of us slept in later than we wanted to.  Adam showed up just before noon for a quick visit while he was down this way.  He can't always stay long but he does his best to be here everyday :)
Danielle from Child Life came by around 12:15pm to see if we were going to head down to meet Gavin Degraw.  Of course!!!  We got down there about 12:30pm just to make sure we had a good seat and Haylee wanted to be sure she got a seat at a microphone. 
While we were waiting for Gavin to show up, Haylee fished questions out of the 'Fishbowl of Questions' to ask him.  She picked 4.  If it were up to Haylee, she would've asked him the entire fishbowl (haha!)  Also while we were waiting, Connie Seacrest (yes, Ryan Seacrest's mom) was there as well and we met her.  She was very nice.  She talked with Haylee about how Gavin Degraw liked to wear hats and they made a bet to see if he would wear one (Haylee said he would).
Gavin Degraw showed up around 1:15pm.  Colbie Calliet was supposed to come but since she wasn't feeling well, she decided to stay back and rest for their show tonight at Chastain.  Haylee won the bet with Connie Seacrest, who very sweetly pointed out to Haylee that she won, because Gavin did show up wearing a hat.  He was a very chatty and very nice guy!  He went on and on during his interview, talking and laughing, and making everyone else laugh.  He sang 2 songs, "Chariot" and "Not Over You" and gave out free CD's of his latest album (which he also signed for Haylee).  He was just a very genuine person...not many celebrities are like that these days (such as when we met Cody Simpson...he seemed very lost and uneasy.  Nice kid, though.).  Apparently, he is big into the Beads of Courage Program and handed out music notes to all the patients to add to their necklaces.  Again, a very sweet and genuine person. 

Gavin Degraw's interview at The Voice

Answering questions from Haylee such as..."Do you have a hidden talent?"  Answer:  After doing DWTS, he found out he was flexible.

"What's your favorite Disney movie?"  Answer: Secretariat....so much so he went and bought the movie along with movie memorabilia.

"If you could be any cartoon character, who would you be?"  Answer:  Bugs Bunny, cause he's a prankster! 

A genuine smile from Gavin Degraw :)

I guess he was thinking...? 

Gavin Degraw and Haylee Kate :)
The doctors found us when we got back...2 hours later.  They waited patiently for us.  They know Haylee doesn't stay in her room if she feels fine and doesn't have to!  No new changes...she still looks good.  Counts went up again, although platelets went down.  Even Kathy, the PA, said she was surprised.  She's only at Day 9 so it's still a little early to tell what her counts are going to do.  We'll just keep an eye on them.  Maybe she could be one of those few kids whose counts don't drop.  If her counts go up again tomorrow, I'm just going to ask them to send us home (haha!  I can always wish!)!!
We headed down to the library and fitness room for our own personal time.  Haylee likes the library because she can play games, play on their Ipads and look at books (she mostly plays computer games). 
The rest of the night was pretty routine:  dinner, bath, Skype with Adam and Mason, a little TV, then bed.  Bed was earlier tonight...9:30pm.

Tuesday's Counts                                                    Wednesday's Counts
WBC - 1970                                                            WBC - 2130
HGB - 10.3                                                              HGB - 9.7
Platelets - 94k                                                           Platelets - 66k
ANC - 710                                                               ANC - 920
SEGs - 36                                                                 SEGs - 43

The fundraiser is still going on!!  We really would like to reach our goal to ensure that all of our financial obligations are well taken care of.  Please promote through Facebook, Twitter, and through email to get the word out!!!  Thanks! 
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee


Please pass this along to any and everyone who can help! If you are aware of any other way to get the fundraiser out in the community, please let me know!

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