5/1/12 - Unexpected news....

Back to the hospital we went today...only to be told that she could complete this consolidation OUTPATIENT!!  We were sooo excited to hear that news!  Ironically enough, I was going to ask if we could try doing this phase outpatient anyway. 
Haylee started the day by not wanting to get her finger pricked for labs.  We weren't prepared for it so it was a change she didn't like.  Afterwards, we were sent to a procedure room so that she could be prepped for her bone marrow aspiration and lumbar puncture.  Her port access went....better.  She didn't have to be restrained, she kept her hands away, she didn't look and she didn't even flinch!!  She's getting used to it. 
Dr. Abdella came in to talk to us about her being outpatient and answered my questions.  Haylee will start the Idarubicin chemo on Monday and have 2 more treatments on Wednesday and Friday.  After that, she will have no more chemo for the rest of this consolidation.  It will make her counts drop, may give her bad mouth sores, and make her nauseous and cause her to throw up.  All that is managable from home.  She has had this chemo before so we know what to expect. 
Haylee is able to return to school for the rest of the school year with the exception of clinic appointments and if she's not feeling well.  If she's feeling fine and her counts are low, she may still go to school but would have to wear a mask.  Both Dr. Abdella and I said that would be up to her. 
Haylee's triglycerides were high again so they put her on a pill to bring them down along with a lower fat diet.  It'll be hard but manageable.  The only time she will have to go down to the hospital is if she gets a fever or something else strange happens (fingers crossed on both that they won't happen). 

Counts looked great!!  I'll keep in touch over the next few days!

PLEASE CONTINUE TO PASS ALONG AND PROMOTE THROUGH FACEBOOK, TWITTER, AND TO ANYONE ELSE WHO MIGHT BE INTERESTED IN LENDING A HELPING HAND THROUGH HAYLEE'S YOUCARING WEBSITE. THANKS!!
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee