4/5/12 - Another great day and Easter Bingo!

Danielle from Child Life explaining how a port works with "Lee the Port Doll"



Haylee listening to Danielle with "Lee"



"Easter" BINGO!



Yea, I played along too...!

Haylee had another great night - still no side effects so far!  She was able to sleep in a little this morning.  Chemo was hooked up around 9am...a long 3 hours!  She can't leave the floor with the chemo so she's confined to her room and the playroom.  Guess where she chooses to spend her time!!  We hung out in there this morning for a while.  Adam came to visit and played Mario Kart with her for a while.  Danielle from Child Life came by to get her updated on her Beads of Courage.  We are updated most of the way through this consolidation.  We will still have a few beads to collect.  Haylee's up to 3 strands now!  Whoever came up with Beads of Courage had a great idea.  It's such a good way to show the kids their accomplishments.
After chemo, she went down to school for a little over an hour.  She's getting good time in right now since she's feeling good.  Her port surgery is tomorrow so I'm allowing her to skip school - haha!  She will be under anesthesia so I imagine that's a good reason!!  The surgeons stopped by over the course of the day and went over with me how port insertion works.  I'm feeling good about it and she will be much better off with the port.  Colleen stopped by after rounds and said she could be off fluids between chemo treatments as long as she continued to drink on her own.  Haylee was excited about that!  The Mitoxantrone chemo starts tomorrow after the last Cytarabine dose (around 12pm) and it runs for about 15 minutes.  She will get that one time tomorrow and Saturday then be done with chemo for this go round.  The Mitoxantrone is blue and could make her pee green and the whites of her eyes a bluish-green color for a few days after.  Our night nurse, Brit, said the older kids think it's cool to have blue-green eyes and pee!  Guess I'll have to have Nonna take pictures if she notices the color changing - haha! 
We went downstairs with Carrie and her mom so the girls could play at The Voice.  They were playing games and doing trivia.  Bingo started at 6pm and the girls were excited about that.  It was Easter themed.  Haylee wanted so bad to win a specialty Easter basket but her numbers weren't called fast enough.  She won some grow tablets, a word search book for me, and Jenga for us to play.  Haylee had her eye on Jenga as soon as it came out of the box! 
CURE provided food for the AFLAC families tonight (and every Thursday) as a way to help out and be supportive.  Haylee and I ate some really good pizza, salad, and cookies.  We relaxed the rest of the night and she went to bed around 10pm. 

Brit was telling me that sometimes kids don't get sick from the first round of Cytarabine - it's usually after the 2nd or 3rd time.  The biggest thing to expect from the Mitoxantrone is the bluish-green eyes and pee!  I'm not sure what time her surgery will be but her NPO orders (nothing by mouth) are in effect as of midnight and will stay in effect until further notice.  If her surgery is going to be too late, the orders will be changed.  They could get her in before her 9am chemo but I highly doubt it.  I should know for sure in the morning.  Either way, she's going to do GREAT!!!