4/18/12 - Low key...all day :)

Dr. Pucci - in disguise!  He has his 'gown' on and sporting 'blonde' hair!  Just trying to be 'one of the girls'!

OH! Busted :(

Dr. Daisy and Dr. Pucci singing Haylee "The Alphabet Love Song" - I would love to have the words to it because it was super, super cute :)

Haylee was a little restless last night.  She kept waking up and wanting to tell me stuff, like that she felt like she may have some sores on her tounge and that she had to go to the bathroom.  My responses...'we'll mention it to the doctors in the morning' and 'go if you gotta go!'.  We both kinda tossed and turned last night, I think.  You would think we would be used to it by now.  Even though it's our 'home' for now, it's not forever.  It's more like an extended stay hotel with room service and medical attention :)
The school room called to ask if it would be ok for Haylee to skip school today...school wanted her to skip!  Haha!  I would've loved for that to happen to me when I was in school!  They were down a teacher today so short on help.  Shortly after that call, they called back to say it was slow and she could go down for a bit.  She went for about an hour this morning and finished up some work.  I told her I would let her skip Friday since it's her spring break back home.  She was happy about that!
The clowns came by for a visit this morning.  Dr. Pucci and Dr. Daisy are too funny.  Dr. Pucci was the only male and he was doing what he needed to do to fit in...so he dressed up like a girl.  Haylee loves when the clowns visit.  Dr. Pucci, Dr. Daisy, and Dr. Smartypants are my favorites.  Haylee likes them all, but she likes Dr. Pucci the best :)
Colleen came by to check her out after she got back from school.  No new changes.  The new anti-fungal would start tomorrow sometime in the afternoon, I believe.  No labs will be drawn until after her port is
reaccessed on Friday.  Her counts will not change drastically from yesterday until Friday.  They are going to give her a rest and deal with it all at one time on Friday.  Hopefully, it will be a breeze! 
We spent the rest of the afternoon just lounging around the room.  Haylee played on the tablet, with her 3DS, and watched tv.  She wanted to be lazy, so I let her.  It was raining all day so we couldn't go outside and nothing was planned in the hospital today.  Danielle came by around 4:15pm to see if she wanted to paint in the playroom with some other patients but she said no.  Adam and Mason came down to have dinner with us.  Haylee really wanted to play soccer with him and even though the rain had stopped by then, it was soaked outside.  It was hard to keep Mason entertained in her room but we managed. 
After Haylee's shower, she started complaining that her arms were itchy.  I put some of the steroid cream on her arms that dermatology ordered for her and it worked for a minute, but once the cool wore off, the itch came back.  After about 20-30 minutes, the itching stopped.  We think it was because the hot water from the shower was hitting her already inflammed skin, making it itch.  I had some oral itching medicine ordered for her, just in case, but so far we haven't had to use it. 

No counts today!

Please pass along or promote through Facebook, Twitter, or to anyone who would be interested the link for Haylee's YouCaring site!  Thanks again!
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee