My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

December 18, 2011

12/17-12/18/11 - Fun times with Nonna!

My mom came again this weekend so that I could go home with the men in my life :)  The blog will be in her words for the most part.

Saturday
Haylee has a restless night Friday until about 1am.  After that, she slept really good until about 8am because she had to wake up and take her morning pills.  Her day nurse was Linnea and she was very patient with Haylee because she has a reputation around here of being a "cranky monkey" when she is woken up to take her meds. 
We went to play BINGO and she won 3 prizes, but not the one she wanted.  After BINGO, she wanted a kids meal from McDonalds, so I went to get it for her.  She ate most of it, but she said the fries were cold.  She played in the playroom for a while - she's very bored without her electronics!  Her mom is bringing them on Sunday.  She wanted an ice cream so we went down to the cafeteria because room service was out of her favorite orange sherbet.  She picked out a chocolate brownie concoction that was as big as she is and ate the whole thing!!
 Her night nurse was Ashley - and Haylee talked her ear off!!  She took her evening meds really well and slept through the night (she woke up once to use the restroom but went right back to sleep right after).

Sunday

The doctor came in this morning and said that she would probably go home in a couple of days!  She has an infection and her counts are down.  She will most likely go home with IV antibiotics and that's OK as long as she's home.  She wanted to go down to the gift shop and get a stuffy - like she needs another one!  As we walked by the cafeteria, she decided she wanted some pepperoni pizza and ice cream.  The cashier said that she could just eat downstairs and to have the nurse call with the meal ticket - yay!  Saved Nonna some money! 

I came back this afternoon - according to the nurse, she had positive blood cultures in both lines.  They are doing antibiotics in both lines to kill the bacteria so that she doesn't have to have the line removed and replaced - that would be awful (so far, it seems to be working)!!  They have been taking blood for cultures daily and so far all cultures have came back negative.  They like to have 3 negative cultures before they will send her home.  Haylee's counts are down, but the nurse said she just has to will those healthy cells out of hiding so she can go home - Haylee thought that was funny.  If her counts go up and the cultures stay negative, we should be outta here this week sometime. 

WBC - 2190
Platelets - 115,000
HGB - 12
SEG - 8
Monocyte - 11

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