My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

December 11, 2011

12/11/10 - Happy Shave-Day Sunday!

Before

After




All the hair on the ground...we kept 2 locks :)

 

 
She had a restful night between 1:30am-8am.  She was unhooked from the pole during that time so there was no beeping :)
Her blood pressure is still high but she began taking the BP pill daily yesterday.  The renal doctors came in after looking at the ultrasound pictures and her kidney function is fine :)  They said her high blood pressure could be a result from the transfusion given to her Friday evening. 
Talked with Haylee this morning about cutting her hair.  She was sitting on the edge of the bed pulling it out just by running her hands through it and said she was making a hairball with it!  Ha ha!  Asked her if she wanted to go ahead and shave it and she said "Yea".  Brittany, one of the Child Life Specialists, has the clippers but Haylee wanted to wait for her Mommy because she shaves Daddy's hair so she knows how to do it!

So, I came back this afternoon for the week.  My mom told me she wanted a chocolate milkshake so we stopped on the way in and grabbed her one.  Haylee was in a pretty good mood when we arrived.  I love when she's in a good mood :)
She visited with Mason and Adam before they left.  Adam and I were talking to her about her shaving her head and what it would feel like.  I told her that when she lost everything, even the peach fuzz, Adam was going to straight razor his head to match.  She smiled about that.  She wanted to know if Mason was going to hug her before he left (yea, she misses him!). 
Brittany came back with her clippers and Haylee let her shave her head!!  She did SOOO awesome!  She didn't even cry!  We had a fashion show with all the hats she has...she enjoyed that.  I took a picture of her with every one of them on.  She told me she didn't want to leave her room without a hat on.  Nothing wrong with that!  One of the volunteers came by and asked if she wanted to do some arts and crafts in the playroom, so she went and played in there.  She had a bath to get all of the hair off of her and then watched "Camp Rock 2". 

*The Hem/Oc doctors came in today and told my mom that she could still go home this week as long as her counts show a stable trend and not an up and down motion.  FINGERS CROSSED!!

WBC - 2240
Platelets - 77,000
Hemoglobin - 11
SEG - 4
Monocytes - 1
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8 comments:

  1. Meth Danielle Jones DeitschDecember 11, 2011 at 10:42 PM

    God love that sweet child... Her hats are adorable but her HUGE smile is the best part of the pictures! She is taking all of this in stride and I am so amazed at how strong she has been. I am still praying for you and hoping that she gets to come home for Christmas. #teamhaylee :)

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  2. AnonymousDecember 12, 2011 at 1:54 AM

    Very Demi Moore! :) She gotta good head for it. And love the hats!! She get some funky wigs too! I agree with Meth.. best part is the huge smile! :) Love you Haylee!! Keep being strong and you will be home for Christmas. I'll keep my eyes open for some super awesome hats :) Love you bunches!! ~~Stephy

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  3. KimDecember 12, 2011 at 9:49 AM

    Haylee Kate who needs hair when you are that beautiful! The only person I'm worried about is Ms. Kim she will be so jealous! I'm looking for Ms. Kim a Beiber hat too. You rock like I knew you would! My Princess love Ms. Rita
    P.S. I am remembering your words don't cry and to see your smile how easy that is to do! Miss you be home for Christmas.

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  4. KimDecember 12, 2011 at 9:52 AM

    Haylee bug me, you and Demi Moore are the only girls that can rock the look! When it grows back me and you are going to have better hair than everyone! I am so excited to come to your house and visit with you and so is Sky. Keep rocking that beautiful smile Love you!

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  5. Michelle PhillipsDecember 12, 2011 at 3:53 PM

    Savannah says you look SO cute and she loves the hats!! We miss you and can't wait for you to come home so Savannah can come over and play.

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  6. Michelle DarnallDecember 12, 2011 at 5:05 PM

    Agree with all of the posts! Haylee you look awesome before and after your hair cut. Be careful..... Your giant smile could be contagious to all the other kids at the hospital, so maybe mom can post your picture in the hallways..... A beautiful face of strength and bravery!!!! Keep it up! Can't wait to read the post that you are going home for Christmas. I know mom, dad and Mason will be excited to relax with you at home. Love and prayers for all of your daily.

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  7. AnonymousDecember 12, 2011 at 6:06 PM

    God bless you Haylee; we are so amazed at your strength and positive attitude. We talk and think of you and your family everyday; I share this blog with Emily and Noah and they are hoping that when you come home they can come and see you.

    Laura, Emily, and Noah Hayes

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  8. Sydnee FulcherDecember 14, 2011 at 7:25 AM

    Haylee You rock this!!! I love you and miss you sooo much!!! Love Taylor!!

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