My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

June 27, 2012

6/26/12 - More visitors, Camp Sunshine fun, and a bad afternoon

Meth, Abby, and Jasmine came to visit!  They were able to join Haylee for Camp Sunshine fun like digging for shells, making nametags, snake painting, fishing and other fun things.  The clowns found them and the girls were having a good time hiding Dr. Squeeze's juggling rings from him.  Adam dropped in for a visit as well and we all had lunch together before everyone had to leave.  We walked down with Meth and the girls, wandered around the gift shop for a minute and the girls had to have their pictures made with the giant giraffe...haha!  It was a very nice visit - the girls had a great time together.


Abby Star, Haylee Kate, and Jasmine Skye


Jasmine and Haylee playing with the clowns

Abby, Haylee, Giant Giraffe, and Jas (who is also sporting her 'Camp Sunshine 2 U' shirt)

Haylee made it back upstairs just in time for BINGO with the Camp Sunshine crew.  Haylee came back with a 4th of July baton and headbands and a harmonica.  Brit came in to put the EMLA on Haylee's port because....it's Port Access Tuesday.  Brit wanted Haylee to try on her headbands but Haylee would only do it if Brit wore one and let me take a picture....

Brit and Haylee sporting their USA support
I'm not going to go through the motions of everything that happened but needless to say, after TWO tries, the port wasn't accessed.  Brit tried first, with no luck.  She actually wasn't able to get the needle in the port and Haylee had fluid on and around her port so the entire port area was a little swollen.  Rebecca came in to try a 2nd time and she almost got it but for whatever reason it just wouldn't work.  They left her unaccessed until tomorrow to see what the doctors wanted to do.  Counts tonight will have to be done by finger prick and she's OK with that (anything to not have to try a 3rd time.  All of it took from 5:30-7:45pm).
After the drama of the evening, she was in a pretty good mood.  She bounces back quickly from tramatic experiences. 

Nothing new from the docs - just waiting.

WBC - 2100
HGB - 12
Platelets - 93k
ANC - 0
SEGs - 0
Lymphs - 98
Atypical - 2 (what are they gonna be?)

The fundraiser is still going on!!  We really would like to reach our goal to ensure that all of our financial obligations are well taken care of.  Please promote through Facebook, Twitter, and through email to get the word out!!!  Thanks! 
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee


Please pass this along to any and everyone who can help! If you are aware of any other way to get the fundraiser out in the community, please let me know!

1 comment:

  1. We had so much fun! I hate she had such a hard time with the access. :( keep your chin up Ryane... Your almost there! I love you both! :)

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