My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

June 18, 2012

6/18/12 - Day 14

There wasn't much going on today.  The doctors were in this morning and since today is the last day of ATRA for this cycle, Haylee can start the Vori anti-fungal either Tuesday or Wednesday.  Counts dropped from yesterday...and the yo-yo pattern begins.  Basically, all that's keeping us here now is counts.  They haven't dropped all the way to zero but they still could.  They could also go up from here.  Below are count comparisons from last admission to this one:

Last Admission                                                  Current Admission
1-Counts began dropping on Day 13                   Counts began dropping on Day 11
2-Counts dropped all the way to zero                  Counts have not dropped to zero yet (if they even will)
3-Counts began to rise on Day 19                       Not sure when counts will rise...counts are in a yo-yo
and was told that day we could go home                    pattern for now
 by Day 21 (and we did)

If these counts follow the pattern of last admission's counts, then counts should start rising by Day 17 (which is Thursday) and we should be out of here by Sunday or Monday.  All hypothetically speaking of course.....I don't hold high hopes of that happening.  I do, however, hold high hopes of being discharged next week.  Counts are SO frustrating!! 

Haylee spent some time with Lindsay and Layne in the playroom today.  They must have gotten a group together because Haylee met another little girl who had a DS and Mario Kart so Haylee came to grab her DS so they could connect and play together.  When I went to get her at 2:30pm (she had been in the playroom for almost 3 hours), Haylee and the other girl were sprawled out on bean bag chairs playing Mario Kart.  It was cute :)
There was a presentation from Zoo Atlanta going on today at 4pm, so before it started we went to get candy from the gift shop and spend some time in the garden just to get out.  The walls start closing in on you if you don't make a break for it every now and then.  We got front row seats for the animal presentation.  Cousteau the Hedgehog was back for a visit along with Dean Martin and Humphrey Bogart of the Norweigan 'Rat Pack' and Pumpernickel the Cottontail Bunny. 


Cousteau the Hedgehog

Dean Martin from the zoo's Norweigian Rat Pack

Pumpernickel the Bunny

Normal evening routine once we went back upstairs.  Haylee's going to start a summer reading program tomorrow.  It's a good incentive to get her off the electronics for a while.  I did some research for low cost, kid friendly things to do once Haylee's been discharged.  I've got to make the time counts are fully recovering fun since she's going to miss camp this year.   I did find some cool things to do and told her about them.  She seemed excited.  If anyone has any other ideas, let me know!

WBC - 2230
HGB - 8.6
Platelets - 132k
ANC - 160
SEGs - 7

Today's counts are very similar to Saturday's counts except the platelets. 

The fundraiser is still going on!!  We really would like to reach our goal to ensure that all of our financial obligations are well taken care of.  Please promote through Facebook, Twitter, and through email to get the word out!!!  Thanks! 
http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee


Please pass this along to any and everyone who can help! If you are aware of any other way to get the fundraiser out in the community, please let me know!

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