6/21/12 - Lillybands and Haylee brought smiles today

We had a boring morning.  It's really hard to get up and around after viewing the daily counts and they aren't what I hoped they would be.  Kelly came in and had nothing new to report.  She said that her overall WBC count is good but the immunity part of it is missing.  Fingers crossed it'll all happen soon and we can go home by Tuesday! 
Haylee and another girl from the floor went downstairs to be interviewed by HLN regarding 'Lillybands', an organization that makes headbands for baby girls, little girls, teen girls, and women as well as 'Ninjabands' for boys and men.  They don't hurt like a regular headband and are soft for comfort.  They donate the bands to hospitals as a sort of treat for the kids.  Haylee and Beth sat in the lobby in front of about 25 kids along with about 10 adults (all wearing Lillybands or Ninjabands), a camera crew, and a reporter.  The girls answered questions from the kids and adults about themselves - both related and non related to their cancers.  Some of the questions were "does cancer hurt?" and "what's it like to have cancer?" and some were "what's your favorite color?" and "what's your favorite sport?" and "what do you like to do for fun?".  The kids there were very nice and loved talking to Haylee and Beth.  After the Q & A, the Lillyband creator, Jen, gave the girls 4 big baskets full of Lillybands and Ninjabands to give out to patients and nurses on their floor.  Beth ended up doing the sit down interview with her mom and the reporter (and I was glad cause I wasn't dressed or prepared for that!).  We took 2 of the big baskets back upstairs with us along with some of the women's bands and Haylee gave those out to the AFLAC nurses.  She even got one of the male doctors to wear a Ninjaband!

Q & A with the Lillyband kids

Answering questions

Camera right in her face

More questions



Haylee and a few of the nurses (and 1 doctor) with the Lillybands

 After the Lillyband excitement, we chilled in the room for a bit then went to BINGO - the most exciting part of our week.  Haylee won herself a clown nose (for when the clowns visit), an Aqua Pets, and Moon Dough.  She wanted the American Girl doll but that was taken quickly. 
We had a chill rest of the night.  The night nurse, Cameron, made her laugh hysterically by teaching her some old school dance moves...The Shopping Cart, The Fisherman, The Sprinkler, and The Cowgirl.  It's been a long time since I've seen those!!  

WBC - 2390
HGB - 8 (holding steady!)
Platelets - 55k
ANC - 0 (automated ANC said 50 which is an improvement since it said 0 the past 2 days; manual ANC said 0 which is what the docs go by)
SEGs - 0
Lymphocytes - 100 :(