Traffic was lighter than I was expecting but still...we got there on 2 wheels! Ok, not literally but right on time. EKG was this morning and our technician is the one we have every week. He is fabulous!! He keeps me and Haylee entertained (like both of us laughing out loud) and he's so good with her. He makes the EKG experience a good one.
Clinic went by faster than it usually does. Usually, we have to wait for hours on the blood chemistry to come back because they have to send it downstairs. The counts come back super fast. Today, the chemistry came back within an hour. When the nurse went to draw her labs, she couldn't get a blood return on either line at first and finally on her yellow line. That scared me at first because she's always had good blood returns before. The doctor and Maggie both said it can happen from time to time and they would just make sure to hep lock her with 5 mL instead of 3 mL for a few days and check it more often. The doctor said her counts and chemistry were good and the EKG came back fine, too. I started asking about Consolidations 2 - 4 and how long we would be inpatient. She said that after the 2nd arsenic cycle was over, she would be inpatient the following week for Consolidation 2 and as soon as her counts recovered, she could possibly do 3 & 4 as an outpatient. That was so exciting to hear!! I thought we would be inpatient for months. Typically, counts recover in 3-4 weeks (every child is different so it'll be give or take). She will have to have another EKG and bone marrow aspiration before she starts the 2nd arsenic cycle and that'll be scheduled sometime during the 2 weeks off. At least we won't be driving down there every day - just a few days during our time off.
We were set up in the infusion room by 11:30 and started infusion by 12:00. Haylee was able to get an hour in at school, too. We were scheduled for 1pm tomorrow but they had a cancellation and now we are scheduled at 9am! So excited :)
I was going to let her go to school on Wednesday since we are due in at clinic at 3pm but the assistant principal emailed me and said Fifth's Disease is going around the school. Dr. Keller said to hold off until Monday.
WBC - 8240
Platelets - 479,000
HGB - 12.4
ANC - 2730
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