My daughter, Haylee Kate, was diagnosed with APML Leukemia, which is a rare form, on November 21, 2011 at 8 years old. I thought this would be a good way for me to get my thoughts and feelings out and to let others know about her ups and downs throughout her treatment.

January 10, 2012

1/10/12 - Getting into the swing of things

Laughing at the clowns

He was trying to read upside down and not doing a good job!
Haylee had another good day at clinic today...no issues!  Her rash is getting better.  Dr. Keller told us to get some hydrocortizone cream to help with the parts that are spreading and itching.  When we got to clinic today, a couple of clowns were making their way through the clinic and infusion side to visit the kids.  'Dr. Pooby' found his way to Haylee while she was getting started with some of her school work and tried to 'help' her.  He would get really silly when I took their picture (hence the top picture of her laughing so hard).  He was making me laugh, too.  I think its great they take the time to visit all the kids and help brighten up their days. 
After she got hooked up to her arsenic, she spent some time with the clinic school teachers and got all of her Language Arts work done.  Now all she has left for this week is Math and Social Studies.  While she was at school, I got some phone calls out of the way and watched re-runs of Storage Wars.  We're getting into a routine and most of the nurses know us by now. 
We saw Savannah, the other girl that has APL, today.  She has began the Maintenance phase.  Her mom told us that she is in complete molecular remission!!!  How exciting!!!  Savannah looked great and we are so happy for her and her family!  :)
Haylee met Mrs. Deal, her H/H teacher, today after clinic.  Haylee is so friendly to everyone all the time so naturally she was a chatterbox!  She was able to go over her Math verbally and learn how to make a timeline for Social Studies so that she will be caught up for this week.  She will have another visit from Mrs. Deal tomorrow and hopefully she will finish all of her work a day early!  She's a whiz at Math, which she got from her Daddy, but the Social Studies will be a little tricky because she has to make a timeline for 3 different people all on the same line.  Sounds easy to us, but she was a little confused by it.  Mrs. Deal was able to teach her a way that she understood.  She finished up some last minute work and called it a night!

My mom got a tattoo of the leukemia ribbon and it looks great!  When I get a picture, I'll post it.
 "HOPE FOR HAYLEE", always :)

2 comments:

  1. LOVE YOU GUYS!!! Stephanie B.

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  2. Love the smile and laugh! She looks so awesome! Love you guys! Miss ya'll so much! Got to get together very soon!

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