Haylee's first day of school and August clinic visit

Haylee started school this past Monday and had a GREAT first day!  She is in the same class as our neighbor and really likes that.  The only complaint I have is that she didn't get off the bus until 5pm Monday because of the school times and the buses not getting back to the elementary school in time after dropping off the middle and high school kids.  She only stayed until 12:15 yesterday because she had a clinic appointment.

The clinic appointment went good as well.  Her counts are great but her ANC is higher than they want it to be.  Yesterday, it was 3560 and they want it between 500-1500 so that her bone marrow stays suppressed.  The 6-MP she takes everyday has to be taken at a certain time in reference to meals and we haven't been sticking to that very closely.  That could have a little to do with why the ANC is higher than they want.  Dr. Abdella said that the first cycle is like a trial cycle and it shows them what they need to do with her meds.  They will most likely increase the dosage of her 6-MP and Methotrexate to bring her ANC down but not at the same time. 

The creator of Lilybands and owner of 'Lilycares Foundation' left her a present at clinic as a thank you for sharing her story and allowing them to interview her.  Some of the girls are wearing their Lilybands "Haylee style", which is around her ankles.  The Lilyband girls got her 'duct tape' art and some other artsy stuff.

When we were leaving yesterday, Layne (clinic CL) stopped us with an invition from Danielle (inpatient CL) to play a kickball game at Atlanta Motor Speedway with Jeff Gordon Labor Day weekend!!  We accepted, of course but I think I was more excited than she was!  How fun will that be for her and the other kids there!!  Makes me wonder if other drivers will be there, too.

Have a great week!