tag:blogger.com,1999:blog-9996576425720754472024-03-13T16:06:15.798-04:00~Hope for Haylee~~Hope for Haylee~Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.comBlogger170125tag:blogger.com,1999:blog-999657642572075447.post-48290095340456320232013-05-01T11:30:00.000-04:002013-05-01T11:30:23.918-04:00Trip to Hilton Head and...FINALLY a diagnosis!!<u><strong>Week of April 8</strong></u><br />
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Haylee had her first sign of 'sickness' since July 2012. She began running a fever around 101 that Monday night not to mention she has had a rash for the past month that no one seems to know the cause of. My mom and I drove her down to Egleston's ED to have counts checked and draw blood cultures. They went ahead and gave her an antibiotic via IV and sent her home since counts were alright. She off and on ran a fever during the week but I was instructed I could give her Tylenol as long as I checked the temp first since her cultures came back negative. <br />
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<strong><u>Week of April 15-19</u></strong><br />
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We spent the week in Hilton Head but not without checking out Hilton Head's ED first. The night of our arrival, we had to take Haylee to get counts checked for a fever...again. She ended up learning to deal with blood draws in the bend of her arm (FINALLY!!). She realizes now that it doesn't hurt...thank goodness! After that visit, we had an absolute BLAST!! We stayed at a house in Sea Pines through the Hilton Head Hero Foundation....a wonderful organization. They help families who have been dealing with cancer have a great vacation. The house was beautiful!! We went on a dolphin cruise, horseback riding, rode bikes all over Sea Pines and Harbour Town, played putt putt (many times), the kids climbed trees in Harbour Town, went to a kids museum, saw the movie "The Croods" - hilarious by the way - saw outdoor music acts, and so much more! We were up mid-morning, out all day, and stayed up playing games with the kids til late night. It was so relaxing and beautiful there. We really enjoyed ourselves. Haylee seemed to hold the fever off after Tuesday so even she did great!<br />
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<tr><td class="tr-caption" style="text-align: center;">Riding bikes - Adam was having to pull Mason and he was trying to get going!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Playing putt putt</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Getting ready for the dolphin cruise</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Watching the dolphins</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Climbing trees</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Up to the top</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Playing at the beach</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Coligny Park - in the fountains</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Pony rides for Mason!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Big horse for Haylee</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Petting the sweet deer</td></tr>
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<strong><u>April 23-26</u></strong><br />
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Haylee had a regular clinic appointment on 4/23 but little did we know that her counts were low and she was running a fever so we were admitted to the hospital. Luckily, my mom came with and stayed with Haylee Tuesday night so that I could go home and grab some clothes for us. They did blood cultures everyday for 3 days to make sure there was no bacterial infections (all cultures were negative), drew blood for a viral panel (7 vials!), checked for viral liver infections, and did an ultrasound on her liver, spleen, and gallbladder. She had no more fever after Tuesday through Friday. We kept busy as much as we could - played poker with the Wells Fargo crew, hung out at Seacrest Studios, played BINGO, had a visit from Mason and Daddy as well as Haylee's teacher, Mrs. Outlaw, and her husband and hung out with some Falcons players - Sam Baker #72, Joe Hawley #61, Garrett Reynolds #75, Mike Johnson #79. We were discharged Friday morning with no news other than a follow up appointment with Dr. Abdella on Tuesday, April 30. <br />
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<tr><td class="tr-caption" style="text-align: center;">Playing poker with the Wild West Wells Fargo Crew</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">She's in the hospital and still has a sense of humor!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mason and Daddy came to visit! Mason loved Haylee's RC helicopter!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Going to pick out gifts for Mom and Dad with Sam Baker from the Atlanta Falcons</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Haylee Kate and Sam Baker #72<br />
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<u><strong>April 27-29</strong></u><br />
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We had a pretty good weekend other than Haylee ran a fever Saturday and Monday nights. I called the after hours clinic on Saturday and they allowed me to give her Tylenol once but to go somewhere for counts if she ran a fever again. She did run a fever Monday night but since we were going to clinic Tuesday morning, I just gave her Tylenol again and sent her to bed. <br />
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April 30<br />
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I was so full of anxiety today that I was almost sick. Haylee went in for blood draw and I was terrified. Dr. Cooper saw me in the hall and tried talking me down from my anxiety reassuring me she wasn't relapsing. Dr. Abdella came in and let us know that they know what her official diagnosis was....Cytomeglovirus. So, what exactly is that you ask? From KidsHealth.com:<br />
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"Infection with cytomegalovirus (CMV), a member of the herpesvirus family, is very common. Between 50% and 80% of people in the United States have had a CMV infection by the time they are 40 years old, according to the Centers for Disease Control and Prevention (CDC).<br />
Kids typically become infected in early childhood, especially those in childcare and preschool settings. CMV infections are rarely serious in otherwise healthy kids and adults; they usually cause only mild symptoms, if any. When symptoms do appear, they're similar to those seen in mononucleosis ("mono") and only last a few weeks.<br />
CMV is mainly a problem for certain high-risk groups, including:<br />
<ul>
<li>unborn babies whose mothers become infected with CMV during the pregnancy</li>
<li>children or adults whose immune systems have been weakened by disease or drug treatment, such as organ transplant recipients or people infected with HIV</li>
</ul>
Once a person has had a CMV infection, the virus usually lies dormant (or inactive) in the body, but it can be reactivated. The virus is more likely to be reactivated — and cause serious illness — in people who have weakened immune systems due to illness."<br />
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She will be treated with an anti-viral medication for almost 2 months to help 'deactivate' the virus. She has been mostly asymptomatic - only fever and rash. They feel she has a mild case of the virus and that hopefully no IV meds will be necessary. We go back in 2 weeks to check the status of her counts (which were really low on Tuesday and the anti-viral can drop counts as well) and to see if the number of copies of the virus has gone down. If the virus hasn't gone down significantly enough for them, they will then give her antibodies to help her fight the virus. Her current immunoglobulin levels (antibodies) are a little low but they feel she has enough to fight it. They will test them again in 2 weeks. <br />
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So there you have it! Cytomeglovirus is the culprit. Nothing serious, but still something we need to watch out for. Keep her in your thoughts and prayers and together we can will this virus back to inactive!!!Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com2tag:blogger.com,1999:blog-999657642572075447.post-32208697352361618042013-01-24T20:48:00.002-05:002013-01-24T20:48:21.746-05:00AHHH!! We've got Bieber Fever!!!!Last week, Kristin from the AFLAC Cancer Center called us to let us know that someone donated 2 tickets to the Justin Bieber concert to a patient who was well enough to enjoy the concert. Everyone there knows Haylee to be a HUGE Bieber fan so she called us to offer us the opportunity. I, of course, said YES with no hesitation. I contacted the owner of the tickets, Angela, and we met up last weekend for lunch and to meet them for the tickets. They were sooo nice!!! Angela and her daughter, Annabelle, were going to the concert as well - just a few rows down from us. <br />
Last night was the concert and we had an absolute BLAST!!! We loved the show! Cody Simpson opened for Carly Rae Jepsen and she opened for Justin. Our seats were AMAZING!! Haylee told me that it was the greatest night of her life :) We some fun and needed mother/daughter time. I loved being able to share that with her. And now she can say her very first concert was Justin Bieber of all people!! A special thanks to Angela, Annabelle and their family for making this possible for us. They are angels!!! We are so thankful for them - we can't say thank you enough!!<br />
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Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com3tag:blogger.com,1999:blog-999657642572075447.post-62255516848453198402013-01-24T20:28:00.000-05:002013-01-24T20:28:11.803-05:00What Haylee has been up to!The beginning of December we had a family weekend with our extended Lee family at a cabin in Blairsville. We had such a good time! We saw waterfalls, drove up and down mountains, played games, and played some more! It was so nice to be with family around the holidays.<br />
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The weekend after the cabin, Haylee had the opportunity to go to the airport and see Santa and Ms. Claus while "flying" to the North Pole. Nonna went with her and they had a really good time. She enjoyed riding in the limo and "flying" in the airplane! They had police escorts down there as well. They got star treatment that day!<br />
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Later, after the North Pole flight, Haylee went to my dad's holiday party with them and was the center of attention with them. She had fun with them winning prizes and playing games. She also got a Furby - she was so excited!! She had a very, very busy weekend!<br />
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Christmas finally came!! The kids were so overwhelmed by all the presents but they had a really good Christmas! <br />
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We went to Snow Mountain at Stone Mountain just before New Years and had a BLAST! We had tickets donated to us from CURE - thank you!!!<br />
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Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com0tag:blogger.com,1999:blog-999657642572075447.post-88723218046087050192012-12-04T18:09:00.002-05:002012-12-04T18:09:47.879-05:00December clinic visitDecember's clinic visit was today and it went great! Haylee's doing great and the doctors are happy with her progress as well. Her counts are still a little too high, but they are coming down...it's just a slow process. Her ANC is 3100 and they want them around 1500 at the highest. Medications were increased...again. Just when I got used to the number of pills and what days of the week to take them, it was changed again! I'll get used to it...the most important thing is that she's doing and feeling good! <br />
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We've got alot going on this month - we're going to spend the weekend in the mountains with family this weekend, Haylee is going to an AFLAC event next weekend at the airport, a Christmas party with Nonna and Paw Paw, winter break, CHRISTMAS, then up to Nashville to visit more family around New Year's. We have so much to be thankful for this year!! <br />
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Haylee goes in on January 3 for her quarterly bone marrow aspirate as well as getting started on the ATRA again (it's the beginning of a new cycle - the 3rd one...only 6 more to go!). <br />
Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-90114670678668277102012-11-20T20:45:00.000-05:002012-11-20T20:45:21.266-05:001 year down...and a positive outlook on life :)A year ago today, this very hour as a matter of fact, I was sitting down at one of the Children's Healthcare immediate care centers with Haylee getting the worst news a parent can get....my child has leukemia (we didn't have the official leukemia diagnosis until the next day). I can't describe to you the emotions I went through, that any of us went through that day. Riding in the ambulance with Haylee and seeing how funny she was being even though she knew something was wrong gave me some strength to get through the night. She was giggling and thought riding in the ambulance was fun. She kept trying to wave to Adam but he couldn't see her. After our arrival, she was pretty much out of it for 6 days. <br />
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For the past year, Haylee has had to get used to A LOT of things she wouldn't have normally had to...swallowing pills, weekly port accesses (not anymore!!!!), numerous surgeries (4 to be exact), lots and lots of chemo treatments, overcoming the fear of finger pricks (and still working on IV pokes), constant blood draws, allergic reactions, lots of antibiotics and anti-virals, MRIs and CT scans, bone marrow aspirations and lumbar punctures and so much more. After it's all said and done, she's bounced back from it all and remained so upbeat, so happy, and so strong. She's exceeded my expectations of the entire experience in so many ways. She's had to deal with some very grown-up things as an 8 & 9 year old. No child should have to grow up before they're supposed to. </div>
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For whatever reason (I'm still trying to figure it out), Haylee had to go through battling leukemia at this time in her life. We, as a family, went through it with her. It made us a stronger family, made us stronger individuals, and gave us an entire new outlook on life. We were told that our lives would change forever....and it has. My baby girl means the world to me and I'm so thankful that she has pulled through everything like she has and continues to do. The continued thoughts and prayers mean so much to us. Words just can't describe how thankful we are that so many people have and still, a year later, continue to support Haylee and our family. We still have about 6 years left to deal with all of this but we are hoping and praying that the next 6 years are more positive than the last.<br />
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In lieu of Haylee's 1 year since diagnosis, Adam and I spent the afternoon with Haylee. We went to Stars and Strikes for a few games of bowling, lunch, and laser tag. Haylee was so funny bowling - she kept throwing and bouncing her ball down the lane cause her ball was too heavy for her. She would get ahead of us in points then lose it and get ahead again. We played laser tag too and she kept giving herself away at the beginning because we could hear her laughing! Eventually, she was able to sneak up on me a few times without me knowing :) I think her and Adam had the most fun during laser tag! After we got home, she played with Savannah (they're BFF ya know!) for a few hours. Adam set up his Call of Duty on the playstation so that the 2 of them could play. Haylee loves to play the game and Adam likes when she plays with him...it's some of their bonding time :)<br />
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I've put a picture timeline of sorts below to show some ups and downs this past year (sorry it's so long; there's a lot to cover in a year!):<br />
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Svv80IFoAxw/UKwfz0767xI/AAAAAAAAA_M/d_WyjOtLGCU/s1600/DSCN1244.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://4.bp.blogspot.com/-Svv80IFoAxw/UKwfz0767xI/AAAAAAAAA_M/d_WyjOtLGCU/s320/DSCN1244.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee's ride to Egleston</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-kkDkeGOMNCA/UKwgB-eGYPI/AAAAAAAAA_U/08VZwxlCEZM/s1600/DSCN1250.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" rea="true" src="http://1.bp.blogspot.com/-kkDkeGOMNCA/UKwgB-eGYPI/AAAAAAAAA_U/08VZwxlCEZM/s320/DSCN1250.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">In the PICU</td></tr>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-QoszdJE-9sQ/UKwgD9SLRAI/AAAAAAAAA_c/3SHp-p2PYLI/s1600/DSCN1251.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://2.bp.blogspot.com/-QoszdJE-9sQ/UKwgD9SLRAI/AAAAAAAAA_c/3SHp-p2PYLI/s320/DSCN1251.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Her first visit from the clowns</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-ktyb6HQUxbw/UKwgSFnQqwI/AAAAAAAAA_s/QzBqHbL6CZw/s1600/DSCN1253.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" rea="true" src="http://1.bp.blogspot.com/-ktyb6HQUxbw/UKwgSFnQqwI/AAAAAAAAA_s/QzBqHbL6CZw/s320/DSCN1253.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Merry Christmas 2011!</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-izsGOFYIiCQ/UKwgUOwfbGI/AAAAAAAAA_0/ruXtJUXgeus/s1600/DSCN1255.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" rea="true" src="http://3.bp.blogspot.com/-izsGOFYIiCQ/UKwgUOwfbGI/AAAAAAAAA_0/ruXtJUXgeus/s320/DSCN1255.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Not feeling well :(</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-K44jVu9ERrw/UKwgbA209bI/AAAAAAAAA_8/NS1tcu1vyK0/s1600/DSCN1260.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-K44jVu9ERrw/UKwgbA209bI/AAAAAAAAA_8/NS1tcu1vyK0/s320/DSCN1260.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Kimberly and Rita visiting and helping Haylee decorate her tree!</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-QSMFZW6abZg/UKwggzndyFI/AAAAAAAABAM/EjI2bX2_1x8/s1600/DSCN1290.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://4.bp.blogspot.com/-QSMFZW6abZg/UKwggzndyFI/AAAAAAAABAM/EjI2bX2_1x8/s320/DSCN1290.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Not feeling well again, but pushing through to paint a birdhouse</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-9Jo8OX4C9as/UKwgt6Qi2PI/AAAAAAAABAk/nXbqsWefWfU/s1600/DSCN1306.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://4.bp.blogspot.com/-9Jo8OX4C9as/UKwgt6Qi2PI/AAAAAAAABAk/nXbqsWefWfU/s320/DSCN1306.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">She's eating!!!!</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-tEzNoXPnyCI/UKwgwOBXmcI/AAAAAAAABAs/e5xdJq3qO1g/s1600/DSCN1307.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://1.bp.blogspot.com/-tEzNoXPnyCI/UKwgwOBXmcI/AAAAAAAABAs/e5xdJq3qO1g/s320/DSCN1307.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">About to shave her head....</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-8TSiCG9HFuo/UKwg0qLQt0I/AAAAAAAABA0/RAxYLXwix2M/s1600/DSCN1308.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://1.bp.blogspot.com/-8TSiCG9HFuo/UKwg0qLQt0I/AAAAAAAABA0/RAxYLXwix2M/s320/DSCN1308.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Rockin' the bald head!!!</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Obm8J2Fhn0g/UKwg-F2qymI/AAAAAAAABBE/DKHWU74EtdI/s1600/DSCN1331.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://4.bp.blogspot.com/-Obm8J2Fhn0g/UKwg-F2qymI/AAAAAAAABBE/DKHWU74EtdI/s320/DSCN1331.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Going home after 30 days in!</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-ysPeEFhKNTo/UKwhRNU-3xI/AAAAAAAABBM/L3yNj8wKTYg/s1600/DSCN1419.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://4.bp.blogspot.com/-ysPeEFhKNTo/UKwhRNU-3xI/AAAAAAAABBM/L3yNj8wKTYg/s320/DSCN1419.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Supposed to be doing homework in clinic....</td></tr>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-R0-7oUt05p8/UKwhUdpcuqI/AAAAAAAABBU/_230i0trLKk/s1600/DSCN1420.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://2.bp.blogspot.com/-R0-7oUt05p8/UKwhUdpcuqI/AAAAAAAABBU/_230i0trLKk/s320/DSCN1420.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">....but playing with Dr. Pucci instead!</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-vL7Diou5BKA/UKwhlGxe4oI/AAAAAAAABBg/DWPOXjTJWh0/s1600/DSCN1423.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-vL7Diou5BKA/UKwhlGxe4oI/AAAAAAAABBg/DWPOXjTJWh0/s320/DSCN1423.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">New glasses :)</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-KkDh6d01i7M/UKwhn8IyiVI/AAAAAAAABBo/AH9yAaVgZDw/s1600/DSCN1432.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-KkDh6d01i7M/UKwhn8IyiVI/AAAAAAAABBo/AH9yAaVgZDw/s320/DSCN1432.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">A visit from the clowns in clinic</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-Q4zA4R4iMW8/UKwodD1Z5sI/AAAAAAAABJI/vb7rfKSCPgw/s1600/DSCN1435.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-Q4zA4R4iMW8/UKwodD1Z5sI/AAAAAAAABJI/vb7rfKSCPgw/s320/DSCN1435.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee's 9th birthday with Taylor</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-VQEWDUprx6U/UKwhruX2T1I/AAAAAAAABBw/Z48MUGA0ybQ/s1600/DSCN1450.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-VQEWDUprx6U/UKwhruX2T1I/AAAAAAAABBw/Z48MUGA0ybQ/s320/DSCN1450.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Meeting Cody Simpson!!</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-RE-A45qmXxc/UKwhvN7PiVI/AAAAAAAABB4/7Ot-r1PPVp4/s1600/DSCN1459.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" rea="true" src="http://4.bp.blogspot.com/-RE-A45qmXxc/UKwhvN7PiVI/AAAAAAAABB4/7Ot-r1PPVp4/s320/DSCN1459.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Chillin' in the garden</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-LvY3AM6gObo/UKwh7EdG0ZI/AAAAAAAABCI/BN_PzZ4ODos/s1600/DSCN1471.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" rea="true" src="http://4.bp.blogspot.com/-LvY3AM6gObo/UKwh7EdG0ZI/AAAAAAAABCI/BN_PzZ4ODos/s320/DSCN1471.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Being a princess</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-s5sOltOrCFE/UKwlGcwjaoI/AAAAAAAABGc/rGcJofPmAwc/s1600/DSCN1530.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" rea="true" src="http://3.bp.blogspot.com/-s5sOltOrCFE/UKwlGcwjaoI/AAAAAAAABGc/rGcJofPmAwc/s320/DSCN1530.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Family weekend to Helen</td></tr>
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-dtReuot2RZw/UKwlRKMhuuI/AAAAAAAABGk/rW5KXnYB04M/s1600/IMAG0104.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="191" rea="true" src="http://2.bp.blogspot.com/-dtReuot2RZw/UKwlRKMhuuI/AAAAAAAABGk/rW5KXnYB04M/s320/IMAG0104.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Beautiful waterfall with my beautiful babies :)</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-6s5rcghm16o/UKwiEOehjzI/AAAAAAAABCQ/_4w4_KSfgLE/s1600/DSCN1536.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" rea="true" src="http://1.bp.blogspot.com/-6s5rcghm16o/UKwiEOehjzI/AAAAAAAABCQ/_4w4_KSfgLE/s320/DSCN1536.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The infamous IV pole</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-W1-lXXpXuRQ/UKwiGak8oDI/AAAAAAAABCY/U-1pKp6adBs/s1600/DSCN1541.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rea="true" src="http://3.bp.blogspot.com/-W1-lXXpXuRQ/UKwiGak8oDI/AAAAAAAABCY/U-1pKp6adBs/s320/DSCN1541.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Danielle explaining the port to Haylee</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Happy Easter 2012!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Gifts from Michelle and her kids up north</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Keeping up on her game!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Meeting with The Fresh Beat Band</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">A nasty rash...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">....yet still silly!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">A serenade from Dr. Pucci </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Charming some football players</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Spring carnival in the garden....again, not feeling well :(</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Chatting with Gavin Degraw</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Had her room TP'd by Dr. Pucci</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Love some Justin Bieber!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Lillyband crew</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">A visit from Taylor!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">We love and miss Lindsay!!!!!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">A visit from Abby and Jazz!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Camp Sunshine To You face painting</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">"Campfire" in the playroom with Camp Sunshine crew</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Playing music with The Cumberland Collective</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Playtime in the garden with Mason :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Photo op with Neal Boortz after the WSB Care-A-Thon</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mini golf in Daytona</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Sunrise in Daytona</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Victory lane at Daytona Speedway </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">In the pits at Jimmie Johnson's car Labor Day weekend at AMS</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">They LOVED the race!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Kick It with Jeff Gordon</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Fishing at family camp at Camp Sunshine</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">She's so giggly!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Happy Halloween from Batgirl and Robin!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">BFF!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">This is Haylee today....1 year later :)</td></tr>
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What a year!!! It's had it's up and downs but it's turned out great in the end!!! Thank you, thank you...from the bottom of our hearts :)<br />
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Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com5tag:blogger.com,1999:blog-999657642572075447.post-82070343271579565802012-11-06T17:18:00.005-05:002012-11-06T17:37:57.187-05:00October & November clinic appointmentsWe've had a lot going on since Haylee's September appointment. We had Family Camp at the end of September, a procedure at the beginning of October, family time at a pumpkin patch, a few festivals, Halloween, and November's clinic appointment. <br />
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October's clinic appointment was the first bone marrow procedure since Haylee started maintenance. The build up and anticipation was stressful for both her and I. I was told she would have to have a lot of labs and I should prepare her for having an arm stick...it didn't go over so well with her but Adam talked with her and she did OK with the news. The morning of, we put EMLA on every part of her arms where she had good veins...the bends of her arms, the tops of her hands, and the inside of each arm. Needless to say, her forearms were numb! We prepared for the IV insertion the best we could (I do say 'we' because it's both of us). Lily, one of the procedure nurses, went for the stick on the top of her hand and her vein blew out :( LaShawn, one of the clinic nurses, was able to get it perfectly the 2nd try. Haylee did pretty good with the 2nd try but the first try was stressful. She was crying and I was crying during the 1st attempt. She did awesome with the 2nd try. I just don't do well with the Haylee-needle combination. She gets so upset and scared that I'm feeling the stress and anxiety she's feeling and all of that put together into 2 emotional females....it's just a hot mess!! I just wish I could bounce back as fast as she does. The procedure went off without a hitch and we were out the door by 12pm. It took 2 weeks for the BMA results to come back so naturally, I was on pins and needles. Dr. Abdella finally called me to let me know the results of leukemia in her bone marrow was NEGATIVE!! She's still in remission and still going strong!!<br />
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We spent some time at Jaemor Farm in October. We go up there every year in the Fall and pick pumpkins, buy really good fresh fruits and vegetables, and enjoy the other farm activities. A few pictures are below:<br />
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<tr><td class="tr-caption" style="text-align: center;">Sliding down the dark slide</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Racing rubber ducks</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Shooting apples at a bus...she loved this!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mason shooting too</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">So sweet!!<br />
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Our Fall Festival was at my center the end of October and Haylee and Mason enjoyed playing and 'trick or treating' there too. They each won something from the Cake Walk, threw pies at Ms. Ivy, and many other fun activities! Halloween was fun, too. They were 'Batgirl and Robin' for Halloween this year (they humored me!). They went trick or treating with a friend of Haylee's, his dad, and Adam. They got tons of candy! <br />
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Haylee's November clinic appointment was today. It went good, just an exam and lab work. Her counts are good...too good still. The doctor increased her Methotrexate by 3 more pills (a total of 17 pills on Tuesdays). Turns out with the 6-MP she takes everyday...she's been taking it with milk which is a big no-no and is probably hindering the absorption process of that chemo pill. We'll get this stuff straight eventually...starting tonight! <br />
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It's been almost a year since Haylee was first diagnosed with leukemia and December 28 will be a year in remission. What a crazy year it's been. We've been through so much and so far, have conquered it all. We are truly blessed for all the love and support we've received over the past year. God has been on our side and is continuing to bless Haylee and our family :)<br />
Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-79683888435631129842012-10-05T20:50:00.001-04:002012-10-05T20:50:26.948-04:00Family Camp with Camp SunshineWe went to Family Camp with Camp Sunshine this past weekend and HAD A BLAST!! It was a great way for us to see other families going through the same stuff we've been through as well as spend a great weekend in the outdoors as a family. All of the 'patients' there had some sort of cancer, lymphoma, or tumor. <br />
We did archery, played putt putt, went gold panning, went fishing, went paddle boating, played soccer, explored the camp (now I don't feel as nervous since I've seen where she will be), played 'get to know me' games with the other families (30 families in all), played 'Minute to Win It' type games, and spent some time with just the other parents getting to know one another. The kids had a blast!!! There was a bonfire the last night of our stay, complete with smores. The last day/morning showcased a slide show of the entire weekend. Pics are below...enjoy!! We absolutely did! :)<br />
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<tr><td class="tr-caption" style="text-align: center;">Michele (Camp Sunshine's Program Director) greeting us Friday night</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">The kids in front of our cabin, Cabin 10</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Making our "H" during the morning Family Art Activity</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">An almost finished product</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Adam in his group of 'Steak Lovers' during Parent Group Activity </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Haylee being shy during her group activity with her age group</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Love this pic of her!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Daddy helping Haylee prepare her bow and arrow</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Getting ready to shoot!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Preparing to fish</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Waiting them out...she actually caught a fish but wouldn't get close enough to take a picture with it.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">On the paddleboat</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Our legs were killing us!!! But we were still smiling :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Playing putt putt</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-9F6OH8eDr8o/UG94GL2Wk3I/AAAAAAAAA6g/-DCQ8yNcWLI/s1600/img_5153.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" mea="true" src="http://3.bp.blogspot.com/-9F6OH8eDr8o/UG94GL2Wk3I/AAAAAAAAA6g/-DCQ8yNcWLI/s320/img_5153.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Thinking of her strategy...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Posing for the camera</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-sJomykL5H7Q/UG97ElhiZ6I/AAAAAAAAA7o/zj4zjBompdg/s1600/img_5511.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" mea="true" src="http://1.bp.blogspot.com/-sJomykL5H7Q/UG97ElhiZ6I/AAAAAAAAA7o/zj4zjBompdg/s320/img_5511.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Playing kickball</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-bQNGUeCdgAA/UG97TMGvRwI/AAAAAAAAA7w/DnZP0fepeZ0/s1600/img_5520.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" mea="true" src="http://4.bp.blogspot.com/-bQNGUeCdgAA/UG97TMGvRwI/AAAAAAAAA7w/DnZP0fepeZ0/s320/img_5520.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mason wanted to play soccer instead</td></tr>
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<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-k5k0wl9UinY/UG93oPskELI/AAAAAAAAA6I/mujYAsjcqw0/s1600/DSCN1979.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" mea="true" src="http://3.bp.blogspot.com/-k5k0wl9UinY/UG93oPskELI/AAAAAAAAA6I/mujYAsjcqw0/s320/DSCN1979.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Launching cards into a hat...not an easy task!!</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-HkBf7WZmaRU/UG94bFRit2I/AAAAAAAAA6w/X5pgfxcb4a8/s1600/DSCN1981.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" mea="true" src="http://4.bp.blogspot.com/-HkBf7WZmaRU/UG94bFRit2I/AAAAAAAAA6w/X5pgfxcb4a8/s320/DSCN1981.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Putting Coco Puffs into another cup by using a straw...they did well!</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-jz4tHFzmmNY/UG94pNMOFuI/AAAAAAAAA68/hI19zD4aACQ/s1600/DSCN1986.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" mea="true" src="http://4.bp.blogspot.com/-jz4tHFzmmNY/UG94pNMOFuI/AAAAAAAAA68/hI19zD4aACQ/s320/DSCN1986.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Trying to get an Oreo in his mouth without using his hands...NOT EASY AT ALL!!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Haylee's attempt</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-mMY1IQwzeBc/UG96olvCpjI/AAAAAAAAA7U/jUqmk0SAjOA/s1600/DSCN1988.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" mea="true" src="http://4.bp.blogspot.com/-mMY1IQwzeBc/UG96olvCpjI/AAAAAAAAA7U/jUqmk0SAjOA/s320/DSCN1988.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mason's attempt</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-ZYoMK4I6-Ag/UG968ZCyhcI/AAAAAAAAA7g/rTn2KI0_sQc/s1600/DSCN1989.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" mea="true" src="http://4.bp.blogspot.com/-ZYoMK4I6-Ag/UG968ZCyhcI/AAAAAAAAA7g/rTn2KI0_sQc/s320/DSCN1989.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">My attempt</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-3cAnnrO65xA/UG97vlW24EI/AAAAAAAAA74/hV2fiaO3HQM/s1600/DSCN1991.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" mea="true" src="http://1.bp.blogspot.com/-3cAnnrO65xA/UG97vlW24EI/AAAAAAAAA74/hV2fiaO3HQM/s320/DSCN1991.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee pulling kids (and adults!) around camp</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">End of camp pow-wow...sooo sweet!!</td></tr>
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Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com3tag:blogger.com,1999:blog-999657642572075447.post-11779325500704034082012-09-11T21:07:00.000-04:002012-09-11T21:07:10.094-04:00September clinic appointmentHaylee had her monthly clinic appointment today and all went well! Dr. Abdella was happy with her counts except that her ANC was too high still - again, we were always wanting it to come up and be high and now its too high! Under normal circumstances, a high ANC would be ideal. Since she's in maintenance they want her ANC lower but still high enough to fight infections (should she need to), around 1500, to keep her bone marrow suppressed so that no leukemia cells can come back during the maintenance phase. The first maintenance cycle is over next month so they will just adjust her medications (increase the dosages) to bring down her counts a little.<br />
It was a short and sweet appointment - we like those!! Next month, she will have a bone marrow aspiration and spinal tap to check and make sure she is still in remission. I have full confidence she is - let's face it, there is no other option!! The results take about a week to come back so needless to say, I'll be on edge until the results come back. My dad made a good point though - if she were starting to get sick, her counts would start to show us, especially her WBC. Haylee isn't looking forward to it because she has to have an IV started and it scares her. I've already starting prepping her for it and she's already shut me out. It's going to be quite a task but we will get through it. This will be minimal compared to what she's already gone through but it's still scary for her. We'll just talk about it as much as she will let me and get ourselves prepared!<br />
Haylee's still going to school full time and is doing great!! She's in Taekwondo 2 days a week and is loving it! We are scheduled to go to Camp Sunshine's Family Camp Weekend at the end of the month and we're all excited about it. We received the email with the schedule of events and all the 'need to knows' and there will be lots of stuff going on. It will be a fun filled weekend! <br />
<br />
Have a great week!<br />
<br />
WBC - 6460<br />
HGB - 12.4<br />
Platelets - 370k<br />
ANC - 4300Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-78174572730987825202012-09-03T13:25:00.002-04:002012-09-03T13:25:58.808-04:00Labor Day night race 2012We continued our NASCAR weekend fun by going to the Labor Day night race on Sunday. Adam and I have never been to a night race and the kids have never been to a race at all so it was quite the experience for them since we had credentials to go down into the pits and the garage area before the race (if the kids were over 14, we could've stayed in the pits the entire time but since they weren't, we had to be out by 6pm). It was so much fun!! The kids were a bit overwhelmed by all that was going on. There were cars going in and out everywhere, crews wheeling things in and out of garages, crews getting pits ready, and appearances by drivers and crew chiefs so people were chasing them down (we're guilty of that when we saw Chad Knaus and Jimmie Johnson!). We saw Chad Knaus wondering around the garage talking to the crew and Jimmie snuck out of his garage for a quick chat with some crew members but then dipped out quicker than I've seen anyone do in a long time. Jack Roush came out and talked with fans for a few minutes but he seemed more lost than anything :)<br />
We made it back to our seats in time for driver introductions. Our seats were awesome - 7 rows back from the track between Turn 4 and Start/Finish line (right as they evened out from Turn 4 to cross Start/Finish). We were directly across from Jeff Gordon's pit stall and diagonally from Jimmie's. We saw all of our favorite drivers go around the track and wave to fans before the race began. <br />
The kids had no idea of how loud it was going to be and the looks on their faces were absolutely CLASSIC! They were laughing almost hysterically because they weren't sure of what else to do. The drivers got into a groove of sorts and they did alot of green flag stops. Jimmie crashed into the wall late in the race taking Sam Hornish Jr. along with him (we were gone after that!), Carl Edwards blew an engine, and Jamie McMurray blew a front tire completely off. The kids loved it and we all had a great time!! Enjoy the pictures!!<br />
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<strong>Special thanks to Michelle and Paula for making it all happen for us - we are truly grateful :)</strong></div>
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<tr><td class="tr-caption" style="text-align: center;">Jeff Gordon's garage</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-4dcxhqnFJpM/UETYavrksMI/AAAAAAAAAxI/YWWIDLLgCF0/s1600/IMAG0316.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-4dcxhqnFJpM/UETYavrksMI/AAAAAAAAAxI/YWWIDLLgCF0/s320/IMAG0316.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Dale Jr's garage</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-IEGMEbcZoew/UETYjclSq7I/AAAAAAAAAxQ/pIIwD3UFxJw/s1600/IMAG0317.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-IEGMEbcZoew/UETYjclSq7I/AAAAAAAAAxQ/pIIwD3UFxJw/s320/IMAG0317.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Made our way back to JJ's garage</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-K2GVNj5nTKY/UETY75zVXsI/AAAAAAAAAxc/q2ln5EeQLrw/s1600/IMAG0318.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://1.bp.blogspot.com/-K2GVNj5nTKY/UETY75zVXsI/AAAAAAAAAxc/q2ln5EeQLrw/s320/IMAG0318.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jimmie's trailer - we're not fans, are we?!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-h4zFuaQRZX8/UETZMQM1TJI/AAAAAAAAAxk/oF707OOW-fk/s1600/IMAG0319.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-h4zFuaQRZX8/UETZMQM1TJI/AAAAAAAAAxk/oF707OOW-fk/s320/IMAG0319.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jimmie's pit stall</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-T7GDQ7QEzlQ/UETZesjbe9I/AAAAAAAAAxs/6DFacZPowpE/s1600/IMAG0320.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-T7GDQ7QEzlQ/UETZesjbe9I/AAAAAAAAAxs/6DFacZPowpE/s320/IMAG0320.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Danica's pit stall (Adam's a fan)</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-xxvJKzatjVM/UETat6lUCWI/AAAAAAAAAx8/G-poT0McoXE/s1600/IMAG0322.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://3.bp.blogspot.com/-xxvJKzatjVM/UETat6lUCWI/AAAAAAAAAx8/G-poT0McoXE/s320/IMAG0322.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Dale Jr's pit stall</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-e39Qh84pdBQ/UETbRCLLRfI/AAAAAAAAAyE/XmYxEEY39mo/s1600/IMAG0324.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="320" src="http://2.bp.blogspot.com/-e39Qh84pdBQ/UETbRCLLRfI/AAAAAAAAAyE/XmYxEEY39mo/s320/IMAG0324.jpg" width="191" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Walking through the pits</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-FaKgvTquHN4/UETbZ7Hl3cI/AAAAAAAAAyM/xji5hv-AoPA/s1600/IMAG0325.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://1.bp.blogspot.com/-FaKgvTquHN4/UETbZ7Hl3cI/AAAAAAAAAyM/xji5hv-AoPA/s320/IMAG0325.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">#83 of Landon Cassill and #42 of Juan Pablo Montoya</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-O9XSLAuB2K4/UETbkANCxVI/AAAAAAAAAyU/ywLZla4Yr8k/s1600/IMAG0326.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-O9XSLAuB2K4/UETbkANCxVI/AAAAAAAAAyU/ywLZla4Yr8k/s320/IMAG0326.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">#34 of David Ragan</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-4azbJHLqrAc/UETbrmyUEcI/AAAAAAAAAyc/KIltF_u2lfk/s1600/IMAG0327.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://3.bp.blogspot.com/-4azbJHLqrAc/UETbrmyUEcI/AAAAAAAAAyc/KIltF_u2lfk/s320/IMAG0327.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">#15 of Clint Bowyer</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-sMO0rnDOu4k/UETdLoQbTjI/AAAAAAAAAyw/QSACHs4LO3k/s1600/IMAG0330.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-sMO0rnDOu4k/UETdLoQbTjI/AAAAAAAAAyw/QSACHs4LO3k/s320/IMAG0330.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Danica's garage</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-Gso-WCd3gy0/UETdeiwcEvI/AAAAAAAAAy4/T1O7aN62gf4/s1600/IMAG0331.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-Gso-WCd3gy0/UETdeiwcEvI/AAAAAAAAAy4/T1O7aN62gf4/s320/IMAG0331.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">#5 of Kasey Kahne</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-3zNCkLjBO1A/UETd5zIRCgI/AAAAAAAAAzA/_agQkwBPhsQ/s1600/IMAG0333.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://1.bp.blogspot.com/-3zNCkLjBO1A/UETd5zIRCgI/AAAAAAAAAzA/_agQkwBPhsQ/s320/IMAG0333.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Back to Gordon's garage</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-APqtKQ96HcY/UETeC2qiMQI/AAAAAAAAAzI/sVqEMndzUIg/s1600/IMAG0334.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://1.bp.blogspot.com/-APqtKQ96HcY/UETeC2qiMQI/AAAAAAAAAzI/sVqEMndzUIg/s320/IMAG0334.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">In front of Jimmie's car/garage</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-nJdNcVQmg7Q/UETe13WLxZI/AAAAAAAAAzQ/FfqC2_6GQVg/s1600/IMAG0336.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-nJdNcVQmg7Q/UETe13WLxZI/AAAAAAAAAzQ/FfqC2_6GQVg/s320/IMAG0336.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ahh!! Its Chad Knaus!</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-29Z2rCx4DPw/UETfDHXUs7I/AAAAAAAAAzY/d-FMdIkFon4/s1600/IMAG0337.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-29Z2rCx4DPw/UETfDHXUs7I/AAAAAAAAAzY/d-FMdIkFon4/s320/IMAG0337.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Chad with the crew</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-q8ku1XXXcwI/UETflMFZA-I/AAAAAAAAAzg/QjLTmJCAdYE/s1600/IMAG0338.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://3.bp.blogspot.com/-q8ku1XXXcwI/UETflMFZA-I/AAAAAAAAAzg/QjLTmJCAdYE/s320/IMAG0338.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jack Roush with fans</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-4T723LSjhyw/UETfuFsDYAI/AAAAAAAAAzs/bpzTTxvyBW8/s1600/IMAG0339.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="320" src="http://1.bp.blogspot.com/-4T723LSjhyw/UETfuFsDYAI/AAAAAAAAAzs/bpzTTxvyBW8/s320/IMAG0339.jpg" width="191" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Caught Jimmie before he could get away!!!</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-xoWKnijQ_6A/UETiMTt9NyI/AAAAAAAAA0g/7O-wXJfKgzI/s1600/IMAG0341.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-xoWKnijQ_6A/UETiMTt9NyI/AAAAAAAAA0g/7O-wXJfKgzI/s320/IMAG0341.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Our view of Turn 4 from our seats</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-xOSZeDw9Zl0/UETiT5mf0dI/AAAAAAAAA0o/EPsa8UhTAWI/s1600/IMAG0342.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-xOSZeDw9Zl0/UETiT5mf0dI/AAAAAAAAA0o/EPsa8UhTAWI/s320/IMAG0342.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The track right in front of us</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-Ubk0sudWeV4/UETiq9IvqjI/AAAAAAAAA0w/c8V5TLyCL3Y/s1600/IMAG0343.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://1.bp.blogspot.com/-Ubk0sudWeV4/UETiq9IvqjI/AAAAAAAAA0w/c8V5TLyCL3Y/s320/IMAG0343.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Michael Waltrip in the red shirt</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-p0XObZsrAH8/UETiy3gbrDI/AAAAAAAAA04/t9pUq6kVAJQ/s1600/IMAG0345.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-p0XObZsrAH8/UETiy3gbrDI/AAAAAAAAA04/t9pUq6kVAJQ/s320/IMAG0345.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Michael hanging out with fan and one of his cars</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-ICuzwFU9Qck/UETjM_A9B-I/AAAAAAAAA1A/ktRTXpq8gPI/s1600/IMAG0346.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-ICuzwFU9Qck/UETjM_A9B-I/AAAAAAAAA1A/ktRTXpq8gPI/s320/IMAG0346.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Here comes Danica!</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-6qR9S0JTNlg/UETjWIWvl0I/AAAAAAAAA1I/ELobAe88bCI/s1600/IMAG0352.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://1.bp.blogspot.com/-6qR9S0JTNlg/UETjWIWvl0I/AAAAAAAAA1I/ELobAe88bCI/s320/IMAG0352.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Danica Patrick</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-wMuV-iFn-CA/UETjyB6hi5I/AAAAAAAAA1Q/_Q_K7c2byoU/s1600/IMAG0354.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-wMuV-iFn-CA/UETjyB6hi5I/AAAAAAAAA1Q/_Q_K7c2byoU/s320/IMAG0354.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Here comes Jimmie!</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-QwDGLG_t_AM/UETj7tjAZAI/AAAAAAAAA1c/zobkKBHqnFo/s1600/IMAG0355.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://2.bp.blogspot.com/-QwDGLG_t_AM/UETj7tjAZAI/AAAAAAAAA1c/zobkKBHqnFo/s320/IMAG0355.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"></td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Iv6xmVTr6x8/UETkiFC8NKI/AAAAAAAAA1k/WMytIiu3rcM/s1600/imagejpeg_2.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="320" src="http://4.bp.blogspot.com/-Iv6xmVTr6x8/UETkiFC8NKI/AAAAAAAAA1k/WMytIiu3rcM/s320/imagejpeg_2.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Ready to go!!</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-LDq5J4cSMEc/UETkk0cDTYI/AAAAAAAAA1s/-PotVaWYpIw/s1600/imagejpeg_1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="320" src="http://2.bp.blogspot.com/-LDq5J4cSMEc/UETkk0cDTYI/AAAAAAAAA1s/-PotVaWYpIw/s320/imagejpeg_1.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Guess he didn't hear me!</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-1M8mF9lXQIk/UETkxl2NjfI/AAAAAAAAA10/rj_W1cAdSBg/s1600/IMAG0358.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://4.bp.blogspot.com/-1M8mF9lXQIk/UETkxl2NjfI/AAAAAAAAA10/rj_W1cAdSBg/s320/IMAG0358.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">On our way out, we found this!</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-qgNN5G9cXkI/UETk1wRyC6I/AAAAAAAAA18/7VaV0RvqzO8/s1600/IMAG0359.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" fea="true" height="191" src="http://3.bp.blogspot.com/-qgNN5G9cXkI/UETk1wRyC6I/AAAAAAAAA18/7VaV0RvqzO8/s320/IMAG0359.jpg" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The perfect sedative for your children - take them to a NASCAR race! The were out for the night :)</td></tr>
</tbody></table>
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Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com2tag:blogger.com,1999:blog-999657642572075447.post-47981572991491385372012-09-01T21:38:00.000-04:002012-09-01T21:43:09.976-04:00A kickball game with Jeff Gordon and friends :)Haylee was asked at our last clinic appointment if she would be interested in playing a kickball game with Jeff Gordon for the Jeff Gordon Children's Foundation and Kick It For Childhood Cancer Foundation during race weekend and of course, we said yes! <br />
We had to be at AMS this morning at 9:30am to get started and it was an absolute blast!! Haylee played with other children that we knew from the AFLAC Cancer Center. It was nice getting the kids together outside of the hospital for a fun event. We got credentials to be in the infield since the game was played on a grassy area right at the entrance of pit road. After all waivers and releases were signed, they took us to the drivers meeting room to get organized by teams, get to know teammates, and wait for Jeff Gordon to arrive. Once he got there, he spoke to the crowd about what Kick It is and recognized the now 12 year old boy, Quinn, who created the foundation. He is a cancer survivor himself and also has MS. We had to wait around a bit because practice was going on on the track. <br />
After we got situated at the 'field', the game began! On Haylee's red team was: Haylee, Beth (a patient), Quinn, Samantha Busch (Kyle Busch's wife, who took a liking to both Haylee and Mason), Jaqueline Butler (David Ragan's wife), Rutelege Wood (one of the co-hosts of the show Top Gear on the History Channel), Jeff Gluck (NASCAR reporter), Marty Smith (ESPN reporter), and a few others I wasn't too sure about. Not sure of everyone on the blue team but a few NASCAR reporters. Jeff played 10 minutes per team until the game was over. He was limited in what he could do so he played catcher unless he was kicking. He said his office didn't want him to play in case he got hurt, like a broken ankle! We would've felt so bad if he did get hurt! All was well...no injuries from anyone today! Haylee played pitcher for her team and used the soccer skills she learned to 'coach' her teammates on how to kick the ball better (and we noticed everyone on her team took her advice!). The times she was 'up to bat', she would launch the ball everytime! It was noticed by other parents as well...that's my girl!! She got into the game - going after the ball, tagging people out and she even threw the ball at Jeff Gordon to tag him out. <br />
While Adam, Mason, and I were standing there watching, a guy who looked very familiar to us walked up and starting talking to us asking us if we had someone in the game and where we were from. We told him that our daughter was the pitcher of the red team and where we were from. A bit more conversation went on then when all was quiet, I asked Adam if he was a driver because he looked familiar. Adam asked him if he had someone in the game and he pointed out a blonde he said was his wife. Adam asked if he was a driver and he said, "Yea, my name is David. David Ragan." How cool!!! <br />
I had an open mouth, insert foot moment with Kyle Busch's wife, Samantha (in my defense, I didn't know who she was before this moment or I would've chosen my words more carefully!). Conversation was as follows:<br />
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Samantha: Haylee, who's your favorite driver? <br />
(Haylee looks to me for answers)<br />
Me: We're Jimmie Johnson fans.<br />
Samantha: Who's your second favorite driver?<br />
(Again, Haylee looks to me for answers)<br />
Me: Well, anyone with Hendrick Motorsports would be second.<br />
Samantha: Well, what about Busch?<br />
Me: Oh no, we're not Busch fans.<br />
Samantha: Not even a little? Kyle Busch is my husband!<br />
Me: Oh my god! Serious? I am so sorry!<br />
Samantha: No, no! That's ok, really. But you like me, right?<br />
Haylee and I: Yes, yes we like you!!<br />
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She said it happens all the time and wasn't the least bit offended by it but I felt about an inch tall for sure!! She was so nice and liked my kids (she kept wanting Mason to hug her and he wouldn't and she was always around Haylee). <br />
We had an absolute BLAST!! It was one of those once in a lifetime experiences and we did it together :) We almost didn't go because we are going to the Sunday night race too and didn't want to make the trip twice with gas being what it is. Thanks to Nonna for that extra 'push'! Enjoy the pictures (there was tons more than what's on here but that would've taken lots more time.)!!<br />
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<tr><td class="tr-caption" style="text-align: center;">Sitting in the Drivers Meeting room waiting to get organized</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Jeff Gordon talking to everyone</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Haylee and Beth</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Jeff handing out signed Jeff Gordon Children's Foundation hats...Haylee opted out of her bandana and wore her hat.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">clockwise from Haylee: Haylee, Jeff Gordon, Jacqueline Butler, Samantha Busch, and Beth strategizing for the Red team. </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">More strategy talk :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">David Ragan watching the game!!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">He was hot :( but don't let that face fool you...he had a good time eating the ice from the water cooler!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Haylee getting ready to throw out another pitch.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">He made it on base with Carrie and Lindsay.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Haylee on base with Carrie and Lindsay</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Pitching to Jeff...</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Jeff launching the ball...look at that form!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Jeff running to 1st base.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Jeff playing catcher for the Blue team and Haylee getting ready to kick.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">And there it goes!</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Both teams after the game.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Rutledge Wood (in the glasses), Jeff Gordon, Haylee Kate, and Quinn (Kick It founder) next to Haylee</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Mason and Jeff :)</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">left to right: Samantha Busch, Jacqueline Butler, Haylee Kate, and Mason</td></tr>
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Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com8tag:blogger.com,1999:blog-999657642572075447.post-5543888711064840662012-08-15T09:06:00.002-04:002012-08-15T09:06:39.519-04:00Haylee's first day of school and August clinic visitHaylee started school this past Monday and had a GREAT first day! She is in the same class as our neighbor and really likes that. The only complaint I have is that she didn't get off the bus until 5pm Monday because of the school times and the buses not getting back to the elementary school in time after dropping off the middle and high school kids. She only stayed until 12:15 yesterday because she had a clinic appointment.<br />
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The clinic appointment went good as well. Her counts are great but her ANC is higher than they want it to be. Yesterday, it was 3560 and they want it between 500-1500 so that her bone marrow stays suppressed. The 6-MP she takes everyday has to be taken at a certain time in reference to meals and we haven't been sticking to that very closely. That could have a little to do with why the ANC is higher than they want. Dr. Abdella said that the first cycle is like a trial cycle and it shows them what they need to do with her meds. They will most likely increase the dosage of her 6-MP and Methotrexate to bring her ANC down but not at the same time. <br />
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The creator of Lilybands and owner of 'Lilycares Foundation' left her a present at clinic as a thank you for sharing her story and allowing them to interview her. Some of the girls are wearing their Lilybands "Haylee style", which is around her ankles. The Lilyband girls got her 'duct tape' art and some other artsy stuff.<br />
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When we were leaving yesterday, Layne (clinic CL) stopped us with an invition from Danielle (inpatient CL) to play a kickball game at Atlanta Motor Speedway with Jeff Gordon Labor Day weekend!! We accepted, of course but I think I was more excited than she was! How fun will that be for her and the other kids there!! Makes me wonder if other drivers will be there, too.<br />
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Have a great week!Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com2tag:blogger.com,1999:blog-999657642572075447.post-27423051125016041962012-08-06T09:51:00.001-04:002012-08-06T10:07:13.381-04:00A much needed vacation!We had a great time in Daytona last week!! We were busy every single day, spent time at the beach almost everyday and enjoyed our time away from all of the troubles we've had this past year. We are back to reality today...first day of PreK for Mason, back to work for Adam and I, and Haylee's last week of summer before school starts. Enjoy a few of the photos from vacation! <br />
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<tr><td class="tr-caption" style="text-align: center;">Ah, serenity :)</td></tr>
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-gbY5mMCv0-4/UB_CO1C9F7I/AAAAAAAAAmk/c4EqOv5VvZk/s1600/DSCN1771.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://1.bp.blogspot.com/-gbY5mMCv0-4/UB_CO1C9F7I/AAAAAAAAAmk/c4EqOv5VvZk/s320/DSCN1771.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Walking over A1A</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-EVRDitkqMe0/UB_Cce8aEVI/AAAAAAAAAms/sy_SHHtuVP0/s1600/DSCN1774.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="320" src="http://2.bp.blogspot.com/-EVRDitkqMe0/UB_Cce8aEVI/AAAAAAAAAms/sy_SHHtuVP0/s320/DSCN1774.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Tallest lighthouse in Florida - and scary!</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Vq6KI92Ajnk/UB_C7IylZVI/AAAAAAAAAm8/-9Xs0e9Dvfg/s1600/DSCN1786.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="320" src="http://4.bp.blogspot.com/-Vq6KI92Ajnk/UB_C7IylZVI/AAAAAAAAAm8/-9Xs0e9Dvfg/s320/DSCN1786.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Feeding some alligators</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-yCYXvrSFn2o/UB_CrYF17SI/AAAAAAAAAm0/ZSz-BC1oHRM/s1600/DSCN1778.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://2.bp.blogspot.com/-yCYXvrSFn2o/UB_CrYF17SI/AAAAAAAAAm0/ZSz-BC1oHRM/s320/DSCN1778.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Chocolate factory</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-zSgfJDMCLvc/UB_DXs7V5gI/AAAAAAAAAnQ/8-tLWCSB3QA/s1600/DSCN1792.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://1.bp.blogspot.com/-zSgfJDMCLvc/UB_DXs7V5gI/AAAAAAAAAnQ/8-tLWCSB3QA/s320/DSCN1792.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Night walking and name writing on the beach</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-ROR1pSzcfeo/UB_Dl3tZixI/AAAAAAAAAnY/23Q8BJnJcZw/s1600/DSCN1797.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://3.bp.blogspot.com/-ROR1pSzcfeo/UB_Dl3tZixI/AAAAAAAAAnY/23Q8BJnJcZw/s320/DSCN1797.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Side of the road turtle in Canaveral National Seashore</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-H1XDtjqW1mQ/UB_MP3l3dTI/AAAAAAAAApE/c_tNOKRj0fw/s1600/DSCN1804.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://2.bp.blogspot.com/-H1XDtjqW1mQ/UB_MP3l3dTI/AAAAAAAAApE/c_tNOKRj0fw/s320/DSCN1804.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Playing at the beach</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-kgvvDtYsjwc/UB_MfXZkviI/AAAAAAAAApM/gKDlbuVuBvk/s1600/DSCN1806.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://1.bp.blogspot.com/-kgvvDtYsjwc/UB_MfXZkviI/AAAAAAAAApM/gKDlbuVuBvk/s320/DSCN1806.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Go Kart time with Daddy</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-LpTbdzGi72Q/UB_NIN0Fq7I/AAAAAAAAApo/0oUnZXSGs7k/s1600/DSCN1820.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://3.bp.blogspot.com/-LpTbdzGi72Q/UB_NIN0Fq7I/AAAAAAAAApo/0oUnZXSGs7k/s320/DSCN1820.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">On the tram getting ready for our All Access tour of Daytona Speedway</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-Pq9e5EN8-Bk/UB_M6QXvEbI/AAAAAAAAApg/OIJpVcI2bDk/s1600/DSCN1816.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://4.bp.blogspot.com/-Pq9e5EN8-Bk/UB_M6QXvEbI/AAAAAAAAApg/OIJpVcI2bDk/s320/DSCN1816.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The kids are in the grandstands somewhere!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-aVVqHW6IgzI/UB_NWAKNpdI/AAAAAAAAApw/yYYCz9gwMUE/s1600/DSCN1789.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://2.bp.blogspot.com/-aVVqHW6IgzI/UB_NWAKNpdI/AAAAAAAAApw/yYYCz9gwMUE/s320/DSCN1789.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mini golf</td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-m2p9Q2POAbs/UB_Msn0G6aI/AAAAAAAAApY/lGk1Mu03FTU/s1600/DSCN1812.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://4.bp.blogspot.com/-m2p9Q2POAbs/UB_Msn0G6aI/AAAAAAAAApY/lGk1Mu03FTU/s320/DSCN1812.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Beautiful sunrise off our balcony :)</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-oDRdHvr9Ugc/UB_DzvfiQQI/AAAAAAAAAng/Yjd1bhdwDyM/s1600/DSCN1803.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" eda="true" height="240" src="http://4.bp.blogspot.com/-oDRdHvr9Ugc/UB_DzvfiQQI/AAAAAAAAAng/Yjd1bhdwDyM/s320/DSCN1803.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Petting stingrays at the Marine Science Center<br />
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<br />
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</td></tr>
</tbody></table>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-47150605499842171562012-07-27T09:53:00.003-04:002012-07-27T09:53:51.839-04:00Haylee's a SUPERSTAR!The 2012 WSB Care-A-Thon was held yesterday and today at Children's Healthcare of Atlanta at Scottish Rite and Haylee is one of the children featured this year! She was interviewed yesterday live on the air by Neal Boortz and even though she was shy, she did great!! She was in our local county paper as well about the Care-A-Thon. Hopefully, in the next few months I will have a link to the live broadcast with Haylee, Neal, and Belinda. I've put the link to the WSB radio feature as well as the link to the local paper about Haylee below. There was a camera crew at the hospital as well who filmed us walking around the clinic area. I'm not sure if it aired and I can't seem to find it online anywhere. <br />
During Haylee's hour of the Care-A-Thon, $97K was raised for the AFLAC Center and Blood Disorders. After her interview, Neal Boortz took a picture of him and Haylee and posted it to his Twitter account and it also went on the CHOA facebook page. She's everywhere!!! <br />
<br />
<a href="http://www.wsbradio.com/news/events/2011-wsb-care-thon/nPbsg/">2012 WSB Care-a-thon</a><br />
<br />
<a href="http://www.barrowcountynews.com/section/34/article/16983">http://www.barrowcountynews.com/section/34/article/16983</a>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-23151294800079633392012-07-21T10:50:00.000-04:002012-07-21T10:50:20.385-04:007/17/12 - Maintenance started...check!Haylee FINALLY started maintenance on Tuesday! I had some major concerns about the medications she's going to be taking so Dr. Abdella walked me through every question that I had and answered them thoroughly. She said Haylee was doing fine, she looked good, and her counts were great. I brought all the medications with me to clinic and she started everything right there in the exam room. No reactions thus far! She started ATRA 2x a day for 14 days, MTX 1x a week (13 pills), 6-MP 1x a day at night, Tricor 3x a day, and Bactrim 2x a day only Saturday and Sunday. Whew, that's alot to keep up with. <br />
She will finish the ATRA while we are at the beach so thats 1 pill we can take away for a while. We have to keep her heavily sunscreened since all the chemo makes her skin sensitive to the sunlight. I guess I'll have to find a swim cap to put on her! Dr. Cooper wanted me to make sure that I put tons of sunscreen on her and to make sure it was hypoallergenic (haha!). <br />
We're so excited to go to the beach! Mason starts PreK the Monday after we come back and Haylee will start 4th grade a week later. Unfortunately, she has clinic the 2nd day of school but will be able to attend most of the day. I'm so glad she will be able to start school with the rest of her peers and so is she! Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com3tag:blogger.com,1999:blog-999657642572075447.post-86482932774634109582012-07-10T21:02:00.001-04:002012-07-10T21:02:13.182-04:007/10/12 - Count check-upHaylee's been doing so good this week!! It's been a nice long week; feels like we've been home for a month already and we LOVE it! <br />
Haylee had her check up with Dr. Abdella today, just for counts and a physical. Counts were good so she doesn't have to wear a mask anymore :) Unfortunately, counts were not good enough for her to start maintenance today. Her platelets have to be at or above 100k and they were only 84k today. She has to go back next Tuesday to check counts again but Dr. Abdella is confident that all counts will be where they need to be to start maintenance next week.<br />
Maintenance consists of an 84 day cycle of ATRA for the first 14 days, Methotrexate (oral chemo) once a week during each cycle, and 6-MP (Mercaptopurine - oral chemo) every day. Each cycle will have to be repeated 9 times. She will have to visit clinic monthly to check counts and a physical and every 3 months, she will have to have a BMA and LP just to check to make sure all is still well.<br />
I did a little bit of research on the chemo she will be taking (I know, I know - I shouldn't do that) and it can be some pretty nasty stuff. Luckily the Methotrexate, which seems to be the worst of the 2, is a low dose (but has to take 13 pills of it at one time equalling 32.5mg). The 6-MP is considered the least nasty and given in a normal pediatric dose (75mg 5x a week and 50mg 2x a week). Crazy!! I talked to another mom who's daughter has/had the same leukemia as Haylee and she takes somewhat of the same doses as Haylee will take (she's 10 years older than Haylee) and said she does fine with them and no side effects to speak of. That made me feel better. We've got the beach vaca coming and I don't want to have to come back early or have her not feeling bad while we're there. I'm sure Haylee will do fine, but I'm a mom and I'll worry until I know she's going to handle it well. <br />
The results of last week's BMA and LP came back CLEAN! There is no leukemia in her bone marrow or spinal fluid and she is still in molecular remission :) I noticed on her count paperwork today her diagnosis says 'APML - in remission, in maintenance. That was so good to see!<br />
<br />
Prayers we can start maintenance next week! Have a great rest of the week!<br />
<br />
WBC - 3580<br />
HGB - 9.8 (Doc said it should come up by next week)<br />
Platelets - 84k (These as well)<br />
ANC - 1450<br />
<br />
<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com2tag:blogger.com,1999:blog-999657642572075447.post-7964960107245547732012-07-07T11:47:00.001-04:002012-07-07T11:47:21.547-04:007/7/12 - Weekend UpdateIt's been great being home! Haylee was super tired on Wednesday. She wanted to go to Walmart and we needed to anyway for a few things. We walked her around the entire store then she came home and went to sleep about 6:45pm. We woke her up about 9pm to do some fireworks then she went back to sleep after that. <br />
Haylee woke up refreshed Thursday morning. I took her around looking for a particular DS game she wants with no luck (but she got out of the house!). It's a pain for her to have to wear a mask outside of the house but she does it with no complaints. Hopefully on Tuesday her counts will be back to normal so she can keep the mask off.<br />
I've been keeping an eye on her incision from her port removal and it's been draining, which I'm told, is normal. Yesterday, she was taking the bandage off to change it and it looked like the incision was opening! It scared me to death and even though I kept that as under control as possible, Haylee could tell I was nervous about something. I put another bandage on it and call clinic. They gave me the number to outpatient surgery and I left a message for the surgeon who performed the surgery. He finally called me back a few hours later and said they will leave the incision open a little so that it can drain, that I could put steri-strips on it (which I did prior to his phone call), she could shower as normal, and resume normal activity and the site would scab over and all would be well. He put my mind at ease and clinic will check it out on Tuesday. It has been looking better since I've been using the steri-strips. <br />
<br />
Haylee's been feeling fine through it all too! She's been glad to be home and life is returning to normal as much as possible. We're actually looking forward to Tuesday so that we can get counts!<br />
<br />
Have a great weekend! I'll update on Tuesday!Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com0tag:blogger.com,1999:blog-999657642572075447.post-57711241034534507982012-07-04T13:14:00.000-04:002012-07-04T13:14:30.126-04:00Happy 4th of July!Haylee had a successful platelet transfusion around 11:30pm Monday night. Jill and I were nervous about if the vein would blow out so just in case, she ran the platelets through the IV machine so she could control the flow and it was successful! Haylee slept right through it. <br />
We played the waiting game for surgery until about 1:15pm on Tuesday. Haylee couldn't have any food or liquids before surgery and she was ANGRY! She was very snippy and on edge all day, naturally. Surgery came to get her and she was in good spirits. She even went down with no Versed, no silly medicine at all; just all natural Haylee (and she was even giggly!). Even though I was nervous for her, she kept saying she wasn't nervous at all and that made me relax a bit. Nonna was there to keep me company and help keep my mind off the waiting while she was in surgery which was a HUGE help. The surgeon came to see us at about 2:45 and let us know everything went well! He said she had some scar tissue but not too bad, there was a little fluid and blood there which he sent off to be cultured for bacteria just in case (since she's been on an antibiotic for 23 days, it should cover any bacteria in there if there is any) and he gave us his opinion on the Power Ports (he hates them!). We went back to her room to wait for her to get out of recovery and be wheeled back upstairs.<br />
Earlier Tuesday morning, Colleen peeked in and let us know that....HAYLEE WOULD BE GOING HOME AFTER SURGERY!!!!! The 'tomorrow' we had been waiting on for 1 1/2 weeks FINALLY arrived! While we were waiting for Haylee to get back upstairs, we packed up everything and loaded the car. <br />
Haylee got back to the room about 4pm. She was awake and again, she was angry. She didn't want anyone messing with her. She had a reaction on her face to the tape they used to secure the breathing tube down her throat. It literally ripped some skin off her face almost like a burn. I was told to just put Aquaphor or Neosporin on her face to keep it moist. She drank 3 or 4 juice boxes and ate some crackers, Amanda gave her a dose of Morphine for the ride home, and Colleen gave me a prescription for Hydrocodone for any pain Haylee may have. <br />
We got home around 7pm and Haylee was feeling good, but tired. She went to bed around 9pm and I crawled in bed with her just to keep my eye on her since I don't have a Pulse/Ox machine at home! Haylee woke up this morning feeling good! She still seems a little tired but in good spirits!<br />
<br />
She has a clinic appointment next Tuesday for a physical, labs, and results on her BMA. Until then, she has to wear a mask any time she leaves the house and if she's in close quarters with anyone other than immediate family. The following week, she will go back to clinic for a physical, labs, and to start maintenance! <br />
<br />
The road was long, long, long but the intensive part of it is over. Some days were bad, some days were really bad, but all in all most days were pretty good. She came out of all of this on top and on the road to a complete recovery. The huge amount of love and ongoing support that was shown to us during these past 7 1/2 months was so great and so positive that without it, things would've been harder to get through. We appreciate everything and everyone that helped us out financially, physically, and emotionally. Haylee still has 2 years of maintenance therapy to complete and then the 5 year countdown to cured begins after that. I will continue to blog 1-2 times a week to update on her progress. <br />
<br />
<br /><strong><u>Tuesday's Counts</u></strong><br />
WBC - 1370<br />
HGB - 10.8<br />
Platelets - 100k<br />
ANC - 80<br />
SEGs - 6<br />
Monos - 21<br />
<br />
<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong><br />
<br />
Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-13430511798560257892012-07-02T22:00:00.000-04:002012-07-02T22:00:23.395-04:007/2/12 - Quite a dayToday was just as the title says....quite a day. Haylee went through so much and it was physically and emotionally exhausting for her, me, and PawPaw (who was here for his weekly visit with Haylee and much needed support). She was stuck with a needle in her hand for an IV 3 times, an attempted port access (which we thought was successful), a port readjustment, and finally a successful IV on her inner forearm. That was 5 needle pokes, not counting the finger prick she got this morning. (I gave the short and condensed version because I just didn't want to live through it all over again. It was hard enough the first time.) She is going to be getting platelets tonight because they were 19k and her gums started bleeding some.<br />
<br />
After all was said and done, tomorrow is going to be a long and busy day:<br />
- Haylee is getting her port removed, BMA done, and LP with chemo done<br />
- Surgery probably won't be until the afternoon sometime since she's considered an 'add-on' to the current schedule (which is why the need for the platelets as well because they won't perform surgery without platelets being above 50k)<br />
- Nothing by mouth after 12am (no food, no liquids)<br />
- Waiting, waiting, and more waiting<br />
<br />
<br />
Counts were better today, but not good enough to go home. <br />
<br />
WBC - 2560<br />
HGB - 11.3<br />
Platelets - 19k<br />
ANC - 30 :) <br />
SEGs - 1 :) <br />
Lymphs - 84 :)<br />
Monos - 14 :)<br />
<br />
Shouldn't be long now!<br />
<br /><br />
<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com3tag:blogger.com,1999:blog-999657642572075447.post-27288635729186326862012-07-01T22:44:00.001-04:002012-07-01T22:44:14.937-04:006/29-7/1/12 - A long weekend for Haylee and NonnaNonna was on vacation this past week and came early Friday to spend the weekend with Haylee. There wasn't anything going on for them to do so they pretty much had to entertain themselves and each other which was a feat, I'm sure!<br />
They tried to re-access Haylee on Sunday afternoon with no luck. Leah tried the best she could as well as the day nurse, Amanda, and neither had any luck. Leah's opinion was that the port needed to come out because there was no use having it in if it couldn't be accessed. Haylee has a clinic appointment along with a BMA and LP with chemo injection so I plan to talk to the doctors about them taking it out permanently. Nonna and Leah said that despite how difficult it was for Haylee, she did AMAZING! Nonna had to stand in my place and I've been there, done that so I know how difficult it is to watch and have to deal with my child in pain and crying for them to stop. As hard as it is for me to deal with it, it had to be harder for my mom since she's the Nonna. I get my strength from my parents - I know that my mom was just as strong as I have to be during that tough time even though it's brutal to deal with (Thanks Mom, you were there for her and stayed strong. I know it hurt to watch and go through that today but you were wonderful!). <br />
<br />
Counts didn't get any better over the weekend until Sunday's counts. They look promising but neither Haylee nor I are getting our hopes up until we're told she's being discharged. <br />
<br />
<u><strong>Friday's Counts</strong></u><br />
<br />
WBC - 1670<br />
HBG - 11.6<br />
Platelets - 40k<br />
ANC & SEGs - 0<br />
Lymphs - 97<br />
Monos - 2<br />
<br />
<strong><u>Saturday's Counts</u></strong><br />
<br />
WBC - 1880<br />
HBG - 12.4<br />
Platelets - 29k<br />
ANC & SEGs - 0<br />
Lymphs - 98<br />
Monos - 1<br />
<br />
<strong><u>Sunday's Counts</u></strong><br />
<br />
WBC - 1790<br />
HGB - 12.2<br />
Platelets - 21k (only went down 8k which is good)<br />
ANC - 20 :) :)<br />
SEGs - 0<br />
Lymphs - 90 (the lowest it's been yet)<br />
Atypical - 5<br />
Monos - 4 :)<br />
<br /><br />
<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com0tag:blogger.com,1999:blog-999657642572075447.post-68876770065891919192012-06-28T22:36:00.001-04:002012-06-28T22:36:11.669-04:006/28/12 - The glimmer of hope we were waiting for...Today was the last day of Camp Sunshine. Haylee was looking forward to today all week because of the archery and the 'campfire' with s'mores. I can't believe all the lengths Camp Sunshine 2 U goes through to make sure that these kids still here in the hospital still have the best camp experience possible. Haylee will be able to go to camp next summer, feeling good and with great counts :) and Mommy won't be as nervous (but nervous nonetheless!). <br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-cEEOmQAZpD4/T-0Gci_QH0I/AAAAAAAAAks/gO839CWXC2g/s1600/DSCN1752.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://2.bp.blogspot.com/-cEEOmQAZpD4/T-0Gci_QH0I/AAAAAAAAAks/gO839CWXC2g/s320/DSCN1752.JPG" vca="true" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee doing some archery</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-9C0UJ_y9LmQ/T-0GrVKMnEI/AAAAAAAAAk0/PFuT2kDe5kM/s1600/DSCN1753.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-9C0UJ_y9LmQ/T-0GrVKMnEI/AAAAAAAAAk0/PFuT2kDe5kM/s320/DSCN1753.JPG" vca="true" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"></td></tr>
</tbody></table>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-DZN-wZfdVWI/T-0JSYwgudI/AAAAAAAAAlo/i2otnDDewzg/s1600/DSCN1755.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://1.bp.blogspot.com/-DZN-wZfdVWI/T-0JSYwgudI/AAAAAAAAAlo/i2otnDDewzg/s320/DSCN1755.JPG" vca="true" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Camp Sunshine 'Campfire'</td></tr>
</tbody></table>
We hung out in the room for a bit in between activities. Dr. Ramirez came in to check on Haylee before we disappeared for a few hours - turns out counts may truly be starting to come in and she could be discharged either tomorrow or over the weekend depending on what counts look like tomorrow morning. Haylee and I are thrilled beyond words but the negative part of me is staying on notice...just in case. She's supposed to be scheduled for Monday or Tuesday for her BMA regardless of what happens. <br />
We headed to The Voice at 3:45pm to meet and listen to The Cumberland Collective. They had a really awesome vibe - like a mix between country music, Zac Brown Band, and Citizen Cope. There were about 10 guys, playing all different instruments and all had different sounds. They meshed really well together. I would probably listen to them if I had their CD. Before their appearance at The Voice, they were actually on our floor in the teen room warming up (our teen room has drums and other musical instruments) and flooded the floor with good music. Haylee walked down their and they gave her a shaker and she played with them. She also played with them at The Voice. They were talking about how they wrote a song called "Haley" but are now going to change the spelling to how Haylee spells her name cause they like the way hers is spelled. They were very nice guys!<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-Cg7so-OEie8/T-0PuZNcLAI/AAAAAAAAAl4/Xtf_m-guoXA/s1600/DSCN1757.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://2.bp.blogspot.com/-Cg7so-OEie8/T-0PuZNcLAI/AAAAAAAAAl4/Xtf_m-guoXA/s320/DSCN1757.JPG" vca="true" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">The Cumberland Collective</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-MRRfG6k3_XE/T-0QX36m4KI/AAAAAAAAAmA/CE8f6RCRnTM/s1600/DSCN1758.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-MRRfG6k3_XE/T-0QX36m4KI/AAAAAAAAAmA/CE8f6RCRnTM/s320/DSCN1758.JPG" vca="true" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee playing her shaker </td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-rTmhD_5y-rQ/T-0Q-FOs4xI/AAAAAAAAAmI/PD9JUu0GLyo/s1600/DSCN1761.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://4.bp.blogspot.com/-rTmhD_5y-rQ/T-0Q-FOs4xI/AAAAAAAAAmI/PD9JUu0GLyo/s320/DSCN1761.JPG" vca="true" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee and The Cumberland Collective</td></tr>
</tbody></table>
After they left, Haylee played DJ at The Voice until time for BINGO. BINGO was busy tonight! There were lots of people there. Haylee won Silly Putty for her and Mason, a little brown teddy bear for Mason, and a $15 iTunes gift card for herself. Not too bad! We finally went back upstairs about 6:45pm and CURE brought dinner tonight - Mellow Mushroom. Haylee wasn't too thrilled with pizza but once she tasted Mellow Mushroom, she changed her mind.<br />
She woke up this morning with some sort of rash on her face (God only knows where it came from but this is Haylee Kate we're talking about!). It would get better throughout the day and then worse. It seemed to get worse when she got hot. We Skyped with Adam and Mason, then Cameron (PM nurse) gave her some Benadryl since the rash seemed more red again. We watched a little 'Princess and the Frog' then she headed off to bed. Fingers crossed we get good counts tomorrow!!<br />
<br />
I want to recognize the very special people who continue to show support of Haylee and our family throughout this entire journey. She still has 2 years of therapy left and then another 5 years of staying in remission to be considered 'cured' (Haylee will be about 16 or so). There are people, near and far...strangers, family, and friends, that continue to be a huge help to us. I know who you are and so do you...thank you, thank you for everything you do and continue to do. You will never know how much it means to us :)<br />
<br />
WBC - 1970<br />
HGB - 12.2<br />
Platelets - 55k (hold steady please!!)<br />
ANC & SEGs - 0<br />
Lymphs - 93 (going down!)<br />
Atypical - 1 (what's it gonna be?)<br />
Monocytes - 6 :) :) :) (these will eventually turn into neutrophils which make up ANC and SEGs)<br />
<br /><br />
<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-32089489334981357462012-06-27T21:34:00.003-04:002012-06-27T21:34:48.645-04:006/27/12 - Counts in limbo and more Camp Sunshine funThe finger pricks this morning....went. At 4am, Ashley tried to get the blood from her finger but she just couldn't get enough (and that was after poking her twice) so at 6:15am, Lab came in, poked her right and got what was needed. Luckily after this morning, they only need enough blood for counts and not counts AND chemistry checks. She did well for 4am and 6am. She stalled a little but finally got the job done and went back to sleep. <br />
Another fun filled morning with Camp Sunshine - fishing, spin art, dot painting, face painting, and drum making! Also, Mickey and Minnie Mouse were around bringing smiles. Mickey came to our door and was urging Haylee to join them (we got up late!). We were able to get a picture with Minnie Mouse, though. Haylee snuck her mask off long enough to get her face painted like a cheetah :)<br />
<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-APGzJl11DuA/T-uawDh_SiI/AAAAAAAAAkM/2Sj8V-4fpJo/s1600/DSCN1747.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://4.bp.blogspot.com/-APGzJl11DuA/T-uawDh_SiI/AAAAAAAAAkM/2Sj8V-4fpJo/s320/DSCN1747.JPG" vca="true" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Cheetah head...</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-YfEfWcI0dPM/T-ubE_EaXII/AAAAAAAAAkU/yaiYrcUD3p8/s1600/DSCN1748.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://3.bp.blogspot.com/-YfEfWcI0dPM/T-ubE_EaXII/AAAAAAAAAkU/yaiYrcUD3p8/s320/DSCN1748.JPG" vca="true" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Cheetah face!</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-MFJJurgmg_8/T-ubYUK-Y2I/AAAAAAAAAkc/raNXn-54Hew/s1600/DSCN1750.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="http://2.bp.blogspot.com/-MFJJurgmg_8/T-ubYUK-Y2I/AAAAAAAAAkc/raNXn-54Hew/s320/DSCN1750.JPG" vca="true" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee Kate and Minnie Mouse</td></tr>
</tbody></table>
<br />
Colleen came in to feel Haylee's port. She went ahead and ordered an X-ray just to make sure it hadn't flipped over and that's why they couldn't get it accessed yesterday. Colleen figured that since it didn't go in correctly on the first poke, the additional pressing and moving it around and around irritated the tissue under the skin and around the port. She agreed to leave Haylee unaccessed to let it heal. Dr. Cooper came in and just checked her out. He likes to see Haylee and is really good with her. At the same time, he's done having to treat her inpatient! He said since she's got a few monocytes today that tomorrow should tell which way the counts are going to go. I said that right now those monocytes mean nothing to me until I see tomorrow's counts. He agreed. <br />
Haylee and I headed down to The Voice for a bit before Adam and Mason got here for dinner. Wendy (she runs The Voice and also used to fill in as a DJ on the weekends on Star 94) was showing her how run the show and man the controls - and she had a good time doing it! While I was sitting down there, Dr. Cooper found me to let me know that the X-ray was fine and the port is facing the correct way - whew, what a relief. He let me know that Colleen put in the orders for Lab to come in and poke Haylee's fingers for blood until further notice. <br />
Adam and Mason showed up for dinner - we always enjoy their visits. I miss my little dude everyday :( Haylee gave Mason and Adam all the stuff she made for them so far this week. Mason was so excited! We ate dinner, the kids played in the room for a while, we went down to the garden for them to throw pennies in the fountains, and they played ball. <br />
Since Haylee isn't accessed, she was able to take a shower - she loved it! We both relaxed for the rest of the night. We love when there's no drama :)<br />
<br />
WBC - 1520<br />
HGB - 12.5<br />
Platelets - 71k<br />
ANC & SEGs - 0<br />
Lymphs - 97<br />
Atypical - 1<br />
Monocytes - 2......Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com2tag:blogger.com,1999:blog-999657642572075447.post-5107282642860262582012-06-27T16:32:00.000-04:002012-06-27T16:32:03.874-04:006/26/12 - More visitors, Camp Sunshine fun, and a bad afternoonMeth, Abby, and Jasmine came to visit! They were able to join Haylee for Camp Sunshine fun like digging for shells, making nametags, snake painting, fishing and other fun things. The clowns found them and the girls were having a good time hiding Dr. Squeeze's juggling rings from him. Adam dropped in for a visit as well and we all had lunch together before everyone had to leave. We walked down with Meth and the girls, wandered around the gift shop for a minute and the girls had to have their pictures made with the giant giraffe...haha! It was a very nice visit - the girls had a great time together. <br />
<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-Wtl1YqXpzEs/T-tnkLypL3I/AAAAAAAAAjg/0ovEnzMbnNk/s1600/DSCN1744.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://2.bp.blogspot.com/-Wtl1YqXpzEs/T-tnkLypL3I/AAAAAAAAAjg/0ovEnzMbnNk/s320/DSCN1744.JPG" vca="true" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Abby Star, Haylee Kate, and Jasmine Skye</td></tr>
</tbody></table>
<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-0Tq3ROLMLiY/T-tnqE0SspI/AAAAAAAAAjs/9qD0TFYGiHI/s1600/photo3.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="http://1.bp.blogspot.com/-0Tq3ROLMLiY/T-tnqE0SspI/AAAAAAAAAjs/9qD0TFYGiHI/s1600/photo3.JPG" vca="true" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Jasmine and Haylee playing with the clowns</td></tr>
</tbody></table>
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-o91rT036M4I/T-tn0iJ_vRI/AAAAAAAAAj4/IVRlmYrIxfU/s1600/photo5.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="http://4.bp.blogspot.com/-o91rT036M4I/T-tn0iJ_vRI/AAAAAAAAAj4/IVRlmYrIxfU/s1600/photo5.JPG" vca="true" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Abby, Haylee, Giant Giraffe, and Jas (who is also sporting her 'Camp Sunshine 2 U' shirt)</td></tr>
</tbody></table>
<br />
Haylee made it back upstairs just in time for BINGO with the Camp Sunshine crew. Haylee came back with a 4th of July baton and headbands and a harmonica. Brit came in to put the EMLA on Haylee's port because....it's Port Access Tuesday. Brit wanted Haylee to try on her headbands but Haylee would only do it if Brit wore one and let me take a picture....<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://3.bp.blogspot.com/-LI08SMwopxg/T-tpHOpLCfI/AAAAAAAAAkA/SVLfyQQz0ag/s1600/DSCN1745.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="http://3.bp.blogspot.com/-LI08SMwopxg/T-tpHOpLCfI/AAAAAAAAAkA/SVLfyQQz0ag/s320/DSCN1745.JPG" vca="true" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Brit and Haylee sporting their USA support</td></tr>
</tbody></table>
I'm not going to go through the motions of everything that happened but needless to say, after TWO tries, the port wasn't accessed. Brit tried first, with no luck. She actually wasn't able to get the needle in the port and Haylee had fluid on and around her port so the entire port area was a little swollen. Rebecca came in to try a 2nd time and she almost got it but for whatever reason it just wouldn't work. They left her unaccessed until tomorrow to see what the doctors wanted to do. Counts tonight will have to be done by finger prick and she's OK with that (anything to not have to try a 3rd time. All of it took from 5:30-7:45pm).<br />
After the drama of the evening, she was in a pretty good mood. She bounces back quickly from tramatic experiences. <br />
<br />
Nothing new from the docs - just waiting.<br />
<br />
WBC - 2100<br />
HGB - 12<br />
Platelets - 93k<br />
ANC - 0<br />
SEGs - 0<br />
Lymphs - 98<br />
Atypical - 2 (what are they gonna be?)<br />
<br />
<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com1tag:blogger.com,1999:blog-999657642572075447.post-73085497079145504542012-06-25T21:04:00.001-04:002012-06-25T21:16:08.696-04:006/25/12 - Camp Sunshine came to Haylee! (and the other kids on the floor)<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-UcUvsRXFFPs/T-i9mDKJ8fI/AAAAAAAAAjE/dQfocG375oU/s1600/DSCN1740.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rca="true" src="http://4.bp.blogspot.com/-UcUvsRXFFPs/T-i9mDKJ8fI/AAAAAAAAAjE/dQfocG375oU/s320/DSCN1740.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee fishing with magnets</td></tr>
</tbody></table>
Since there are many children here on the floor that aren't able to make it to summer camp with Camp Sunshine this year, like Haylee....Camp Sunshine came to them! They will be here everyday this week to do fun things with the kids. Today, they had a bracelet making station (I made a bracelet for Haylee), ring toss (that Haylee stayed at mostly), fishing for magnetized fish, a name tag making table, and a place to make their own 'sunshine'. Haylee wanted to play the games mostly, but she sat down and dabbled in some art for a little bit. Later in the day, 'Mr. Tone' the Magician put on a show for them filled with magic and laughter. Haylee even brought her 'magic handkerchief' and did a bit of magic herself. I let her do everything by herself with the 'camp counselors' so she was at least on her own like she would be if she were at camp. <br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">Magic show with Mr. Tone</td></tr>
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<a href="http://3.bp.blogspot.com/-aTIogThdFco/T-i-j7NbTNI/AAAAAAAAAjU/J_uLooe56P0/s1600/DSCN1743.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" rca="true" src="http://3.bp.blogspot.com/-aTIogThdFco/T-i-j7NbTNI/AAAAAAAAAjU/J_uLooe56P0/s320/DSCN1743.JPG" width="320" /></a></div>
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Nonna and PawPaw came to visit today since they're both on vacation this week. When they left, Haylee and I hung out in the room for most of the afternoon. All of the excitement happened this morning! </div>
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Dr. Cooper came by this morning to check in - no changes, just waiting. Haylee's platelets were below 10k so she had to get a unit of platelets today. He put a positive spin on her counts for me today. As of today's counts, Haylee has 4% atypical cells, which are cells that the bone marrow hasn't quite decided what it wants them to be yet. They could turn into monocytes, SEGs, neutrophils, lymphocytes or another type of cell. We are all hopeful, crossing our fingers, and praying they turn into monocytes since they are the first cells to come back when counts rise. We'll see. I'm not getting my hopes up. I'm tired of doing that and getting my hopes shot down. <br />
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WBC - 2470</div>
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HGB - 12.8</div>
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Platelets - <10k (makes me wonder how low they really were)</div>
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ANC - 0</div>
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SEGs - 0</div>
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Lymphocytes - 96</div>
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Atypical cells - 4 (fingers crossed they're something good!)</div>
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<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com2tag:blogger.com,1999:blog-999657642572075447.post-42139042175212456052012-06-25T15:14:00.001-04:002012-06-25T15:21:14.726-04:006/23-6/24/12 - Weekend #3 (and hopefully the last)<strong><u>Saturday</u></strong><br />
<br />
The therapy dogs came to visit today. Haylee liked Loki, the black Pomeranian. She said he was cuter than Nonna and PawPaw's Sadee Jane...hard to believe! <br />
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<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-jJbf56q8G5s/T-i2G-CVKpI/AAAAAAAAAik/OxorTLjcpPw/s1600/DSCN1737.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rca="true" src="http://2.bp.blogspot.com/-jJbf56q8G5s/T-i2G-CVKpI/AAAAAAAAAik/OxorTLjcpPw/s320/DSCN1737.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee and Loki</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Looks like Beethoven!</td></tr>
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They weren't really too busy and nothing else was going on. Today's counts were promising...if they stay up, she could go home by Monday or Tuesday!<br />
<br />
WBC - 2320<br />
HGB - 12.2<br />
Platelets - 26k<br />
ANC - 20<br />
SEGs - 1<br />
Lymphocytes - 99<br />
<br />
<br />
<strong><u>Sunday</u></strong><br />
<br />
There was a carnival downstairs in the classrooms hosted by One Heart One Love Foundation with carnival games and arts and crafts for the kids to do. They got tickets and were able to exchange them for prizes. They could play the games as many times as they wanted and get as many tickets as they wanted. Adam, Mason, and I got there just in time to be able to go down with Haylee and Nonna. The kids had a good time :)<br />
Counts went back down. No chance of going home before mid-week at the absolute earliest (and that's if counts start coming in by Monday). <br />
<br />
WBC - 2480<br />
HGB - 12.7<br />
Platelets - 15k<br />
ANC - 0<br />
SEGs - 0<br />
Lymphocytes - 100 :(<br />
<br />
<strong><span style="font-size: large;">The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </span></strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee"><span style="font-size: large;">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</span></a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com0tag:blogger.com,1999:blog-999657642572075447.post-10768525873313870682012-06-25T12:21:00.002-04:002012-06-25T15:21:00.379-04:006/22/12 - Queen for a Day, a mystery guest, and saying good-bye to LindsayHaylee had a busy day today. The doctors came by to let me know that Haylee's hemoglobin was below 8 so she was going to get 2 units of blood this afternoon. That'll take a while.... :(<br />
Volunteers brought a flyer by today about a King/Queen for a Day going on complete with makeup applications, manicures, ice cream sundaes, smoothies, and also things for boys to do. Haylee didn't do the makeup (since she reacts to everything) so she just let them paint her nails, had ice cream, a smoothie, and decorated a cookie. <br />
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<tr><td class="tr-caption" style="text-align: center;">Gold nails with blue glitter :)</td></tr>
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Haylee's mystery guests showed up at the start of the King/Queen for a Day event - Taylor, Sydnee, and Chad! Haylee and Taylor were BFF when they were 3 and up until Taylor moved about an hour away. She was trying to guess Thursday night who was coming to visit but wasn't able to guess. Haylee and Taylor raided the ice cream and smoothie stands in the playroom, bounced around all over the place, and played games. They haven't seen each other since Haylee's birthday in February and the visit was much<br />
welcomed :)<br />
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<tr><td style="text-align: center;"><a href="http://1.bp.blogspot.com/-6t6SskoRGZ8/T-iEki0k10I/AAAAAAAAAiA/ERCoPuIXPuQ/s1600/DSCN1727.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rca="true" src="http://1.bp.blogspot.com/-6t6SskoRGZ8/T-iEki0k10I/AAAAAAAAAiA/ERCoPuIXPuQ/s320/DSCN1727.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee and Taylor :)</td></tr>
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<tr><td style="text-align: center;"><a href="http://4.bp.blogspot.com/-MyHZnKC6gFk/T-iE2d26-gI/AAAAAAAAAiM/iAcjV1aIs-E/s1600/DSCN1726.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rca="true" src="http://4.bp.blogspot.com/-MyHZnKC6gFk/T-iE2d26-gI/AAAAAAAAAiM/iAcjV1aIs-E/s320/DSCN1726.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee and Taylor playing 'Headbands - Disney version'. </td></tr>
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All the excitement died down around 4pm. Lindsay came in just before 5pm to say her final good-byes to Haylee (she made Haylee her last stop and gave extra time for good-byes). We are really going to miss her around here. She had this really great connection with Haylee that none of the other child life specialists have with her. Lindsay was by far Haylee's favorite person to see at the hospital (besides the clowns on Tuesdays and Fridays in clinic and Wednesdays on inpatient). She helped Haylee through lots of rough patches, helped to keep her calm when necessary, entertained her, and made her smile when she needed it most. Best of luck to Lindsay as she makes her move back to Texas - we will miss you dearly.<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="http://2.bp.blogspot.com/-RdJz1_nk6Z0/T-iHDaIx5wI/AAAAAAAAAiY/zQDM9m_optg/s1600/DSCN1730.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" rca="true" src="http://2.bp.blogspot.com/-RdJz1_nk6Z0/T-iHDaIx5wI/AAAAAAAAAiY/zQDM9m_optg/s320/DSCN1730.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Haylee and Lindsay :)</td></tr>
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Nonna showed up about 7:15pm and I went home for the weekend. Counts are still zero but maybe that'll change over the weekend. <br />
<br />
WBC - 2400<br />
HBG - 7.9<br />
Platelets - 38k<br />
ANC - 30<br />
Lymphocytes - 100 :(<br />
<br />
<br />
<strong>The fundraiser is still going on!! We really would like to reach our goal to ensure that all of our financial obligations are well taken care of. Please promote through Facebook, Twitter, and through email to get the word out!!! Thanks! </strong><br />
<a href="http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee">http://www.youcaring.com/fundraiser_details?fundraiser_id=1892&url=hopeforhaylee</a><br />
<br />
<br />
<strong><span style="font-size: large;">Please pass this along to any and everyone who can help!</span> <span style="font-size: large;">If you are aware of any other way to get the fundraiser out in the community, please let me know!</span></strong>Anonymoushttp://www.blogger.com/profile/10794949811791384210noreply@blogger.com0